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Внешние ссылки главной страницы ( 162 ) | |
ec.europa.eu/health/non_communicable_diseases/steeringgroup_... | Steering Group on Health Promotion, Disease Prevention and Management of Non-Communicable Diseases |
ec.europa.eu/health/ern/board_member_states_en | Board of Member States of the ERNs |
rd-action.eu | RD-Action |
eur-lex.europa.eu/LexUriServ/LexUriServ.do?uri=OJ:L:2009:315... | European Commission Decision of 30 November 2009 (2009/872/EC) |
ojrd.com/content/9/1/30 | “The European Union Committee of Experts on Rare Diseases: three productive years at the service of the rare disease community... |
rd-action.eu/eucerd/EUCERD_Recommendations/EUCERD_Recommenda... | EUCERD Recommendations on Rare Disease Patient Registration and Data Collection (5 June 2013) |
rd-action.eu/eucerd/EUCERD_Recommendations/ExecSumm_Registri... | Executive Summary |
rd-action.eu/eucerd/EUCERD_Recommendations/PWP_RegistryRecom... | Powerpoint presentation of the Recommendation (June 2013) |
rd-action.eu/eucerd/EUCERD_Recommendations/EUCERD_Recommenda... | (6 June 2013) |
rd-action.eu/eucerd/EUCERD_Recommendations/ExecSumm_Indicato... | Executive Summary |
rd-action.eu/eucerd/EUCERD_Recommendations/EUCERD_Indicators... | presentation of the Recommendation (January 2014) |
rd-action.eu/eucerd/EUCERD_Recommendations/ern_recos.pdf | EUCERD Recommendations on European Reference Networks for Rare Diseases (31 January 2013) |
rd-action.eu/eucerd/EUCERD_Recommendations/20150610_erns_euc... | Addendum (10 June 2015) |
rd-action.eu/eucerd/EUCERD_Recommendations/ExecSumm_ERNRD.pd... | Executive Summary |
rd-action.eu/eucerd/EUCERD_Recommendations/EUCERD_ERN_Reco.p... | presentation of the Recommendation (January 2013) |
rd-action.eu/eucerd/EUCERD_Recommendations/recommendationsca... | Recommendations of the EUCERD to the European Commission and Member States on Improving Informed Decisions Based on the Clinic... |
rd-action.eu/eucerd/EUCERD_Recommendations/press_cavomp.pdf | Executive Summary |
rd-action.eu/eucerd/EUCERD_Recommendations/EUCERD_CAVOMP.pdf | presentation of the Recommendation (September 2012) |
rd-action.eu/eucerd/EUCERD_Recommendations/eucerd-recommenda... | EUCERD Recommendations on Quality Criteria for Centres of Expertise for Rare Diseases in Member States (24 October 2011) |
rd-action.eu/eucerd/EUCERD_Recommendations/bg_cereco.pdf | BG – Bulgarian |
rd-action.eu/eucerd/EUCERD_Recommendations/ce_cereco.pdf | CS – Czech |
rd-action.eu/eucerd/EUCERD_Recommendations/da_cereco.pdf | DA – Danish |
rd-action.eu/eucerd/EUCERD_Recommendations/el_cereco.pdf | EL – Greek, |
rd-action.eu/eucerd/EUCERD_Recommendations/es_cereco.pdf | ES – Spanish |
rd-action.eu/eucerd/EUCERD_Recommendations/et_cereco.pdf | ET – Estonian |
rd-action.eu/eucerd/EUCERD_Recommendations/fi_cereco.pdf | FI – Finnish |
rd-action.eu/eucerd/EUCERD_Recommendations/fr_cereco.pdf | FR – French |
rd-action.eu/eucerd/EUCERD_Recommendations/hu_cereco.pdf | HU – Hungarian |
rd-action.eu/eucerd/EUCERD_Recommendations/it_reco.pdf | IT – Italian |
rd-action.eu/eucerd/EUCERD_Recommendations/lt_cereco.pdf | LT – Lithuanian |
rd-action.eu/eucerd/EUCERD_Recommendations/lv_cereco.pdf | LV – Latvian |
rd-action.eu/eucerd/EUCERD_Recommendations/mt_cereco.pdf | MT – Maltese, |
rd-action.eu/eucerd/EUCERD_Recommendations/nl_cereco.pdf | NL – Dutch |
rd-action.eu/eucerd/EUCERD_Recommendations/pl_cereco.pdf | PL – Polish |
rd-action.eu/eucerd/EUCERD_Recommendations/pt_cereco.pdf | PT – Portuguese |
rd-action.eu/eucerd/EUCERD_Recommendations/sk_cereco.pdf | SK – Slovakian |
rd-action.eu/eucerd/EUCERD_Recommendations/sl_cereco.pdf | SL – Slovenian |
rd-action.eu/eucerd/EUCERD_Recommendations/sv_cereco.pdf | SV – Swedish |
rd-action.eu/eucerd/EUCERD_Recommendations/press_cereco.pdf | Executive Summary |
rd-action.eu/eucerd/EUCERD_Recommendations/PWP_CERecommendat... | presentation of the Recommendations (October 2011) |
rd-action.eu/eucerd/EUCERD_Recommendations/EUCERD_NBS_Opinio... | EUCERD Opinion on Potential Areas of European Collaboration in the field of New Born Screening – July 2013 |
ec.europa.eu/health/rare_diseases/docs/recommendation_coding... | Commission Expert Group on Rare Diseases – Recommendation on Ways to Improve Codification of Rare Diseases (Novemb... |
ec.europa.eu/health/rare_diseases/docs/2015_recommendation_c... | Commission Expert Group on Rare Diseases – Recommendation on cross-border genetic testing of rare diseases in the Eu... |
ec.europa.eu/health/sites/health/files/rare_diseases/docs/re... | Commission Expert Group Recommendations to Support the Incorporation of Rare Diseases into Social Services and Policies |
rd-action.eu/eucerd/SoA_main/2014ReportStateofArtRDActivitie... | 2014 Report on the State of the Art of Rare Diseases Activities in Europe – Part I: Overview of Rare Disease Act... |
rd-action.eu/eucerd/SoA_main/2014ReportStateofArtRDActivitie... | 2014 Report on the State of the Art of Rare Diseases Activities in Europe -Part II: Key developments in the fiel... |
rd-action.eu/eucerd/SoA_main/2014ReportStateofArtRDActivitie... | 2014 Report on the State of the Art of Rare Diseases Activities in Europe -Part III: European Commission activit... |
rd-action.eu/eucerd/SoA_main/2014ReportStateofArtRDActivitie... | 2014 Report on the State of the Art of Rare Diseases Activities in Europe -Part IV: European Medicines Agency ac... |
rd-action.eu/eucerd/SoA_main/2014ReportStateofArtRDActivitie... | 2014 Report on the State of the Art of Rare Diseases Activities in Europe -Part V: Activities of European Member... |
ncbi.nlm.nih.gov/pubmed/25725454 | Rare disease policies to improve care for patients in Europe |
rd-action.eu/eucerd/SoA_main/2013ReportStateofArtRDActivitie... | 2013 Report on the State of the Art of Rare Diseases Activities in Europe – Part I: Overview of Rare Disease Act... |
rd-action.eu/eucerd/SoA_main/2013ReportStateofArtRDActivitie... | 2013 Report on the State of the Art of Rare Diseases Activities in Europe -Part II: Key developments in the fiel... |
rd-action.eu/eucerd/SoA_main/2013ReportStateofArtRDActivitie... | 2013 Report on the State of the Art of Rare Diseases Activities in Europe -Part III: European Commission activit... |
rd-action.eu/eucerd/SoA_main/2013ReportStateofArtRDActivitie... | 2013 Report on the State of the Art of Rare Diseases Activities in Europe -Part IV: European Medicines Agency ac... |
rd-action.eu/eucerd/SoA_main/2013ReportStateofArtRDActivitie... | 2013 Report on the State of the Art of Rare Diseases Activities in Europe -Part V: Activities of European Member... |
rd-action.eu/eucerd/SoA_main/2012-state-art-part-i.pdf | EUCERD Report: 2012 Report on the State of the Art of Rare Diseases Activities in Europe – Part I: Overview of R... |
rd-action.eu/eucerd/SoA_main/2012-state-art-part-ii.pdf | EUCERD Report: 2012 Report on the State of the Art of Rare Diseases Activities in Europe – Part II: Key developm... |
rd-action.eu/eucerd/SoA_main/2012-state-art-part-iii.pdf | EUCERD Report: 2012 Report on the State of the Art of Rare Diseases Activities in Europe – Part III: European Co... |
rd-action.eu/eucerd/SoA_main/2012-state-art-part-iv.pdf | EUCERD Report: 2012 Report on the State of the Art of Rare Diseases Activities in Europe – Part IV: European Med... |
rd-action.eu/eucerd/SoA_main/2012-state-art-part-v.pdf | EUCERD Report: 2012 Report on the State of the Art of Rare Diseases Activities in Europe – Part V: Activities of ... |
rd-action.eu/eucerd/SoA_main/2011-state-art-part-i(1).pdf | EUCERD Report: 2011 Report on the State of the Art of Rare Diseases Activities in Europe – Part I: Overview of Rare ... |
rd-action.eu/eucerd/SoA_main/2011-state-art-part-ii.pdf | EUCERD Report: 2011 Report on the State of the Art of Rare Diseases Activities in Europe – Part II: European Commiss... |
rd-action.eu/eucerd/SoA_main/2011-state-art-part-iii.pdf | EUCERD Report: 2011 Report on the State of the Art of Rare Diseases Activities in Europe – Part III: Activities in E... |
rd-action.eu/eucerd/SoA_main/2009-initiatives-incentives(1).... | EUCERD Report: 2009 Report on Initiatives and Incentives in the Field of Rare Diseases of the EUCERD |
rd-action.eu/eucerd/EJA/Deliverables/WP4finalreport_belgium.... | Belgium |
rd-action.eu/eucerd/EJA/Deliverables/WP4finalreport_croatia.... | Croatia |
rd-action.eu/eucerd/EJA/Deliverables/WP4finalreport_cyprus.p... | Cyprus |
rd-action.eu/eucerd/EJA/Deliverables/WP4finalreport_denmark.... | Denmark |
rd-action.eu/eucerd/EJA/Deliverables/WP4finalreport_finland.... | Finland |
rd-action.eu/eucerd/EJA/Deliverables/WP4finalreport_france.p... | France |
rd-action.eu/eucerd/EJA/Deliverables/WP4finalreport_georgia.... | Georgia |
rd-action.eu/eucerd/EJA/Deliverables/WP4finalreport_greece.p... | Greece |
rd-action.eu/eucerd/EJA/Deliverables/WP4finalreport_hungary.... | Hungary |
rd-action.eu/eucerd/EJA/Deliverables/WP4finalreport_italy.pd... | Italy |
rd-action.eu/eucerd/EJA/Deliverables/WP4finalreport_lithuani... | Lithuania |
rd-action.eu/eucerd/EJA/Deliverables/WP4finalreport_luxembou... | Luxembourg |
rd-action.eu/eucerd/EJA/Deliverables/WP4finalreport_netherla... | Netherlands |
rd-action.eu/eucerd/EJA/Deliverables/WP4finalreport_poland.p... | Poland |
rd-action.eu/eucerd/EJA/Deliverables/WP4finalreport_romania.... | Romania |
rd-action.eu/eucerd/EJA/Deliverables/WP4finalreport_russia.p... | Russia |
rd-action.eu/eucerd/EJA/Deliverables/WP4finalreport_serbia.p... | Serbia |
rd-action.eu/eucerd/EJA/Deliverables/WP4finalreport_slovakia... | Slovak Republic |
rd-action.eu/eucerd/EJA/Deliverables/WP4finalreport_spain.pd... | Spain |
rd-action.eu/eucerd/EJA/Deliverables/WP4finalreport_sweden.p... | Sweden |
rd-action.eu/eucerd/EJA/Deliverables/WP4finalreport_uk.pdf | United Kingdom |
rd-action.eu/eucerd/EJA/Deliverables/WP4finalreport_ukraine.... | Ukraine |
rd-action.eu/eucerd/EJA/Deliverables/WP4Workshop_Europlan_Be... | EUCERD Joint Action Workshop Report: National plans/strategies for rare diseases |
europlanproject.eu/EventAttachment/2e0688c5-de95-4c09-83ac-c... | Workshop report: Key indicators for national plans/strategies workshop |
europlanproject.eu/EventAttachment/e34ab12c-1f73-41fb-a956-8... | Workshop report: Inception workshop on National Planning for Rare Diseases, 10-11 September 2012, Rome |
rd-action.eu/eucerd/EJA/Deliverables/WP7_WorkshopReport_Cent... | Workshop: From Centres of Expertise to European Reference Networks |
rd-action.eu/eucerd/EJA/Deliverables/WP7_SummaryReport_Centr... | Summary workpackage report: Centres of expertise and quality of care for rare diseases |
rd-action.eu/eucerd/EJA/Deliverables/WP8Workshop_ERN_2014.pd... | EUCERD Joint Action Workshop: ERNs and structural funds for Rare Diseases |
rd-action.eu/eucerd/EJA/Deliverables/WP7Workshop_CE_Madrid_2... | EUCERD Joint Action Workshop Report: Preliminary outcomes of the EJA survey on centres of expertise |
rd-action.eu/eucerd/EJA/EUCERDJA_ERN2012.pdf | Workshop report: European Reference Networks (ERNs), 25 & 26 September 2012, Newcastle |
rd-action.eu/eucerd/Workshop_report/ern-analysis-2011.pdf | EUCERD Report: Preliminary analysis of the experiences and outcomes of pilot European Reference Networks for rare di... |
rd-action.eu/eucerd/Workshop_report/eucerd-workshop-report-l... | EUCERD Workshop Centres of expertise for rare diseases and European collaboration between centres of expertise for r... |
rd-action.eu/eucerd/Workshop_report/eucerd-workshop-report-l... | EUCERD Workshop Report : Centres of Expertise/European Reference Networks for Rare Diseases |
rd-action.eu/eucerd/Workshop_report/european-reference-netwo... | RDTF Report: European Reference Networks in the field of Rare Diseases: State of the art and Future Directions – Jul... |
rd-action.eu/eucerd/Workshop_report/rdtf-state-of-the-art-cr... | RDTF Report: Centres of Reference for Rare Diseases in Europe – State-of-the-art in 2006 and Recommendations of the ... |
rd-action.eu/eucerd/Workshop_report/overview-of-current-cent... | RDTF Report: Overview of Current Centres of Reference on rare diseases in the EU |
rd-action.eu/eucerd/EJA/WP8WorkshopEJAEPIRARE.pdf | Workshop report: Registries for rare diseases and the European registry platform |
rd-action.eu/eucerd/EJA/WP8Reg_31112_report.pdf | Workshop report: Rare diseases registration |
rd-action.eu/eucerd/Workshop_report/eucerdema-workshop-repor... | EUCERD/EMA Workshop Report: Towards a public-private partnership for registries in the field of rare diseases (4 Oct... |
rd-action.eu/eucerd/Workshop_report/eucerd-indicators-report... | Workshop on Health Indicators for Rare Diseases, |
rd-action.eu/eucerd/Workshop_report/health-indicators-for-ra... | RDTF Report: Health indicators for rare diseases I – Conceptual framework and development of indicators from existin... |
rd-action.eu/eucerd/Workshop_report/patient-registries-in-th... | RDTF Report: Patient Registries for Rare Diseases |
rd-action.eu/eucerd/Workshop_report/health-indicators-for-ra... | RDTF Report: Health Indicators for Rare Diseases: State of the art and future directions |
rd-action.eu/eucerd/EJA/EGTEUCERD_Terminologies_270912_WP5.p... | Summary report of the workshop on cross-referencing of terminologies (27-28 September 2012) |
rd-action.eu/eucerd/EJA/2014WP5OrphacodeWSReport1.pdf | Summary report of the workshop on Orphacodes in health information systems (18 March 2014) |
rd-action.eu/eucerd/EJA/Deliverables/WP5_WSReport_Ispra_Oct2... | Summary report of the workshop on Orphacodes in health information systems, (1-2 October 2014, Ispra) |
rd-action.eu/eucerd/EJA/WP8_WS_GeneticTesting2014.pdf | Workshop Report: Cross-Border Genetic Testing in the European Union |
rd-action.eu/eucerd/EJA/JRC_Genetic_testing_offer_in_Europe.... | Workshop: The genetic testing offer in the EU |
rd-action.eu/eucerd/Workshop_report/how-many-drugs-for-how-m... | RDTF Report: How Many Drugs for How Many Patients? Recommendations of the Rare Diseases Task Force |
rd-action.eu/eucerd/EJA/EJA_Specialised_Social_Services_Pape... | EUCERD Joint Action: Rare Diseases – Addressing the Need for Specialised Social Services & Integration into Social... |
rd-action.eu/eucerd/EJA/Deliverables/EJAWP6WorkshopReport201... | EUCERD Joint Action Workshop: |
rd-action.eu/eucerd/EJA/EJAWP6GuidingPrinciplesSocialService... | EUCERD Joint Action: Guiding Principles for Specialised Social Services |
rd-action.eu/eucerd/EJA/WP6TrainingSSP.pdf | Workshop report: Training for social services providers |
rd-action.eu/eucerd/EJA/WP6GuidingPrincipalsTrainingProvider... | EUCERD Joint Action Guiding Principles on Training for Social Services Providers |
rd-action.eu/eucerd/EJA/WP6ExTrainingProviders.pdf | EUCERD Joint Action: Examples of Training Programmes for Social Service Providers |
rd-action.eu/eucerd/EJA/Deliverables/WP6WSReport2014.pdf | EUCERD Joint Action Workshop: Guiding principles for social care |
rd-action.eu/eucerd/EUCERD_RDTF_meeting/8EUCERD_ExecutiveSum... | 8th Meeting of the EUCERD – Luxembourg, 5-6 June 2013 |
rd-action.eu/eucerd/EUCERD_RDTF_meeting/EUCERD7_ExecutiveSum... | 7th Meeting of the EUCERD – Luxembourg, 31 January – 1 February 2013 |
rd-action.eu/eucerd/EUCERD_RDTF_meeting/press_eucerd6execsum... | 6th Meeting of the EUCERD – Luxembourg, 14-15 November 2012 |
rd-action.eu/eucerd/EUCERD_RDTF_meeting/5th-meeting-of-the-e... | 5th Meeting of the EUCERD – Luxembourg, 20-21 June 2012 |
rd-action.eu/eucerd/EUCERD_RDTF_meeting/fourth-meeting-of-th... | 4th Meeting of the EUCERD – Luxembourg, 26-27 January 2012 |
rd-action.eu/eucerd/EUCERD_RDTF_meeting/third-meeting-of-the... | 3rd Meeting of the EUCERD – Luxembourg, 24-25 October 2011 |
rd-action.eu/eucerd/EUCERD_RDTF_meeting/1138.pdf | 2nd Meeting of the EUCERD – Luxembourg, 22-23 March 2011 |
rd-action.eu/eucerd/EUCERD_RDTF_meeting/first-meeting-of-the... | 1st Meeting of the EUCERD – Luxembourg, 9-10 December 2010 |
rd-action.eu/eucerd/EUCERD_RDTF_meeting/minutes-first-meetin... | Report on the 1st Rare Diseases Task Force meeting – 20/01/2004 |
rd-action.eu/eucerd/EUCERD_RDTF_meeting/minutes-of-the-third... | Report on the 3rd Rare Diseases Task Force meeting – 20/06/2005 |
rd-action.eu/eucerd/EUCERD_RDTF_meeting/minutes-of-5th-meeti... | Report on the 5th Rare Diseases Task Force meeting – 08/06/2006 |
rd-action.eu/eucerd/EUCERD_RDTF_meeting/minutes-6th-meeting-... | Report on the 6th Rare Diseases Task Force meeting – 14/12/2006 |
rd-action.eu/eucerd/EUCERD_RDTF_meeting/meeting-report-7th-m... | Report on the 7th Rare Diseases Task Force meeting – 20/06/2007 |
rd-action.eu/eucerd/EUCERD_RDTF_meeting/meeting-report-8th-m... | Report on the 8th Rare Diseases Task Force meeting – 23/10/2007 |
rd-action.eu/eucerd/EUCERD_RDTF_meeting/meeting-report-9th-m... | Report on the 9th Rare Diseases Task Force meeting – 28/02/2008 |
rd-action.eu/eucerd/EUCERD_RDTF_meeting/report-of-the-rdtf-m... | Report on the 10th Rare Diseases Task Force meeting – 13/11/2008 |
rd-action.eu/eucerd/EUCERD_RDTF_meeting/meeting-report-11th-... | Report on the 11th Rare Diseases Task Force meeting – 30/04/2009 |
rd-action.eu/eucerd/EUCERD_RDTF_meeting/meeting-report-12th-... | Report on the 12th Rare Diseases Task Force meeting – 23/10/2009 |
europlanproject.eu/Events?idEvent=3&idEventType=2 | European Structural Funds for Rare Disease Plans, 29-31 October 2014, Rome |
rd-action.eu/eucerd/EJA/WP5_WSReport_Ispra_Oct2014.pdf | Summary report of the workshop on Orphacodes in health information systems, (1-2 October 2014, Ispra) |
rd-action.eu/eucerd/EJA/Deliverables/EGTEUCERD_Terminologies... | Workshop on cross-referencing of terminologies |
ihcp.jrc.ec.europa.eu/our_activities/public-health/jrc-publi... | European workshop on the genetic testing offer in Europe |
rd-action.eu/eucerd/Workshop_report/rare2011.pdf | EUCERD/Eurobiomed Event – Rare2011 Conference European Day |
rd-action.eu/eucerd/EJA/Deliverables/EJADeliverable3.pdf | Deliverable 3: Communication Strategy & Website; annual State of the Art report; OrphaNews newsletter |
rd-action.eu/eucerd/EJA/Deliverables/EJADeliverable5.pdf | Deliverable 5: Capacity Building Report for Rare Disease National Plans/National Strategies in EU Member States |
rd-action.eu/eucerd/EJA/Deliverables/EJADeliverable6.pdf | Deliverable 6: Relevant coding and classification of Rare Diseases in International nomenclatures |
rd-action.eu/eucerd/EJA/Deliverables/EJADeliverable7.pdf | Deliverable 7: Report on Guiding Principles for social care for rare diseases and EUCERD Recommendations in the Soci... |
rd-action.eu/eucerd/EJA/Deliverables/EJADeliverable8.pdf | Deliverable 8: State of the Art Report in Healthcare Systems and good practices in Rare Diseases |
rd-action.eu/eucerd/EJA/Deliverables/EJADeliverable10.pdf | Deliverable 10: Proposals for the sustainability of rare disease network tools and resources |
rd-action.eu/eucerd/EJA/WP4Workshop_Europlan_Berlin_2014.pdf | Workshop Report: National plans/strategies for rare diseases workshop |
apps.who.int/classifications/icd11/browse/f/en | Rare diseases in the ICD-11 Beta Draft |
orphadata.org/ | Rare diseases cross-referenced with other terminologies (via Orphadata) |
irdirc.org/ichpt | List of International Consortium of Human Phenotype Terminologies ICHPT Codes (via IRDiRC website) |
rd-action.eu/eucerd/EJA/OrphaCode_Leaflet.pdf | Information leaflet on how to use the OrphaCode: Making rare diseases visible in your health information system |
eurordis.org/specialised-social-services | Map of Specialised Social Services |
rd-action.eu/eucerd/EJA/EJAWP6WorkshopReport2012.pdf | Workshop report: Guiding principles for Specialised Social Services |
rd-action.eu/eucerd/EJA/WP6WSReport2014.pdf | Workshop Report: Guiding principals for social care ( |
rd-action.eu/eucerd/EJA/WP7Workshop_CE_Madrid_2014.pdf | Workshop Report: Preliminary outcomes of the WP7 survey on centres of expertise |
rd-action.eu/eucerd/EJA/WP7_SummaryReport_CentresExpertiseRD... | Summary workpackage report: Centres of expertise and quality of care for rare diseases |
rd-action.eu/eucerd/EJA/WP8_Registries_MDS.pdf | Working document: Minimal Data Set for Rare Diseases Registries |
rd-action.eu/eucerd/EJA/WP8_Registries_Thesaurus.pdf | Working document: Thesaurus of Registry Terminology |
rd-action.eu/eucerd/EJA/WP8Workshop_ERN_2014.pdf | Workshop Report: ERNs and structural funds for Rare Diseases |
Внутренние ссылки главной страницы ( 13 ) | |
#_Toc66181208 | Outcomes . [if supportFields]> PAGEREF _Toc66181208 \h |
eucerd.eu/wp-content/uploads/2013/06/EUCERD_Recommendations_... | Strategies |
eucerd.eu/?post_type=document&p=1928 | DE – German |
eucerd.eu/?post_type=document&p=1971 | RO – Romanian |
eucerd.eu/?page_id=3406 | EUCERD Joint Action Workshop: Preliminary outcomes of the EJA survey on centres of expertise e |
eucerd.eu/?post_type=document&p=1231 | EUCERD Workshop on centres of expertise for rare diseases and European collaboration between centres of expertise fo... |
eucerd.eu/?post_type=document&p=1227 | EUCERD Workshop: Centres of Expertise/European Reference Networks for Rare Diseases s |
eucerd.eu/?page_id=2462 | Workshop on registries for rare diseases and the European registry platform |
eucerd.eu/?page_id=2023 | Workshop on rare disease registration |
eucerd.eu/?post_type=document&p=1234 | EUCERD/EMA Workshop: Towards a public-private partnership for registries in the field of RD |
eucerd.eu/?page_id=3441 | EUCERD Joint Action Workshop: Training for social services providers , 10-11 October 2013, Copenhagen – organised th... |
eucerd.eu/?page_id=2191 | Specialised Social Services for RD |
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