Возраст домена | 25 лет |
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The International Pompe Association (IPA) is an International federation of Pompe disease patients groups.
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amda-pompe.org | 3 | 5 |
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Еще 29 сайтов после авторизации |
Данные предоставлены сервисом semrush
Данные linkpad ( 20 Февраля 2015 ) | |
Количество ссылок на сайт | 295 |
Количество доменов, которые ссылаются на сайт | 61 |
Количество найденных анкоров | 38 |
Исходящие (внешние) ссылки домена | 234 |
Количество доменов, на которые ссылается сайт | 92 |
Количество исходящих анкоров | 110 |
Внешние ссылки главной страницы ( 8 ) | |
asgct.org/ | American Society of Gene & Cell Therapy, ASGCT |
asgct.org/education/pompe-disease | , |
youtube.com/watch?v=tEEZMCRVlNQ&feature=youtu.be | video |
asgct.org/global/documents/pompe-infographic.aspx | infographic |
asgct.org/education/gene-therapy-basics | Gene Therapy Basics |
asgct.org/education/different-approaches | Different Gene Therapy Approaches |
asgct.org/ASGCT/media/about/Basics-_-mythbusting-graphic.pdf | Gene Therapy Mythbusting |
rdcu.be/bXsxK | link |
Внутренние ссылки главной страницы ( 133 ) | |
/ | Home |
/?format=feed&type=rss | - |
/about-us | About IPA |
/about-us/ipa-board | IPA Board, Advisors & More |
/about-us/ipa-members-and-contacts | IPA Members and Contacts |
/about-us/ipa-reviews-a-reports | IPA Reviews & Reports |
/about-us/ipa-conferences | IPA Conferences |
/about-us/ipa-position-papers | IPA Position Papers |
/pompe-disease | Pompe Disease |
/pompe-disease/patient-testimonials | Patient Testimonials |
/pompe-disease/testimonials-on-video | Testimonials on Video |
/pompe-disease/pompe-survey | Pompe Survey |
/pompe-disease/together-we-are-healthy-tips-and-tricks-from-... | Together We Are Healthy: Tips and Tricks from the Pompe Community |
/pompe-disease/patients-helping-patients | Patients Helping Patients |
/pompe-disease/diagnosis | Diagnosis |
/pompe-disease/therapy-2007 | Therapy (2007) |
/pompe-disease/clinical-trials | Clinical Trials |
/pompe-disease/pompe-registry | Pompe Registry |
/pompe-disease/memorials | Memorials |
/publications | Publications |
/news | News |
/international-pompe-day | Int*l Pompe Day |
/international-pompe-day/ipd-activities | Activities |
/international-pompe-day/2019-ipa-calendar | 2019 IPA Calendar: Call for Submissions |
/international-pompe-day/2018-talent-contest | 2018 Talent of Pompe (ToP) Awards: Results |
/international-pompe-day/ipd-fundraiser-2015 | IPD Fundraiser 2015 |
/international-pompe-day/2015-fundraiser-gallery | 2015 Fundraiser Gallery |
/international-pompe-day/photo-upload-form | "Together We Are Strong" Photo_Upload_Form |
/international-pompe-day/ipd-gallery-2017-uploads | IPD Gallery 2017 (Uploads) |
/international-pompe-day/ipd-gallery-2016-uploads | IPD Gallery 2016 (Uploads) |
/international-pompe-day/ipd-gallery-2015-uploads | IPD Gallery 2015 (Uploads) |
/international-pompe-day/ipd-gallery-2014-uploads | IPD Gallery 2014 (Uploads) |
/international-pompe-day/ipd-archive | Archive |
/more/links | Links |
/more/links/pompe-organizations | Pompe Organizations |
/more/links/patient-websites | Patient Websites |
/more/links/funds-for-children-in-need | Funds For Children In Need |
/more/links/miscellaneous | Miscellaneous |
/more/gallery/san-antonio-2011 | San Antonio 2011 |
/more/gallery/rotterdam-2012 | Rotterdam 2012 |
/contact | Contact |
/privacy | Privacy |
/news/631-first-ipa-community-advisory-board-cab-meeting | First IPA Community Advisory Board (CAB) Meeting |
/news/631-first-ipa-community-advisory-board-cab-meeting?tmp... nofollow | |
/images/pdfs/IPA_CAB_Meeting_Summary.pdf | Summary of Key-Takeaways |
/news/630-asgct-american-society-of-gene-cell-therapy | Educational Material On Gene Therapy For Pompe Disease |
/news/630-asgct-american-society-of-gene-cell-therapy?tmpl=c... nofollow | |
/news/629-ssiem-annual-symposium | Read more: SSIEM Annual Symposium |
/news/629-ssiem-annual-symposium?tmpl=component&print=1 nofollow | |
/news/628-therapy-for-pompe-disease-now-refunded-in-singapor... | Therapy for Pompe Disease now refunded in Singapore |
/news/627-the-role-of-patient-advocacy-organizations-in-shap... | The role of patient advocacy organizations in shaping medical research: the Pompe model |
/news/626-mlda-malaysia-lysosomal-diseases-association | Ride With Hope |
/news/625-moving-on-with-pompe-2 | Moving On With Pompe! |
/international-pompe-day/624-moving-on-with-pompe | Moving On with Pompe! |
/news/621-overview-of-clinical-trials | Overview of Clinical Trials |
/news/620-amicus-therapeutics-announces-first-patient-dosed-... | Amicus Therapeutics Announces First Patient Dosed in Phase 3 PROPEL Study |
/news/619-new-zealand-rare-disease-day-award-2019-for-allyso... | New Zealand Rare Disease Day Award 2019 for Allyson Lock |
/news/618-fabio | 2019 IPA Awareness Calendar |
/news/616-community-advisory-board-cab-call-for-applications | Community Advisory Board (CAB) - Call for Applications |
/news/615-ipa | Enzyme Replacement Therapy Reduces The Risk For Wheelchair Dependency In Adult Pompe Patients |
/news/612-audentes | The Humanistic Burden of Pompe Disease: Are There Still Unmet Needs? A Systematic Review. |
/news/609-update-on-a-clinical-trial-comet-study-by-sanofi-g... | Update on a Clinical Trial (COMET Study by Sanofi Genzyme) |
/news/607-amicus-therapeutics-announces-positive-functional-... | Amicus Therapeutics Announces Positive Functional Data from Initial Patients in Pompe Phase 1/2 Study |
/news/606-obituary-to-henri-termeer | Obituary to Henri Termeer |
/international-pompe-day/604-2017-talent-of-pompe-top-awards... | 2017 Talent of Pompe (ToP) Awards: Results |
/international-pompe-day/602-living-healthy-with-pompe | Living Healthy with Pompe |
/international-pompe-day/597-2017-talent-of-pompe-top-awards | 2017 Talent of Pompe (ToP) Awards |
/news/600-valerion-therapeutics-demonstrates-a-new-mechanism... | Valerion Therapeutics Demonstrates a New Mechanism for Treating Pompe Disease |
/news/599-program-update-for-phase-1-2-pompe-study-by-amicus... | Program Update for Phase 1/2 Pompe Study by Amicus Therapeutics |
/news/601-amicus-therapeutics-presents-additional-positive-p... | Amicus Therapeutics Presents Additional Positive Preliminary Phase 1/2 Data |
/news/598-amicus-therapeutics-presents-scientific-findings-a... | Amicus Therapeutics Presents Scientific Findings and Preclinical Data for Pompe Program |
/news/595-amicus-therapeutics-announces-positive-preliminary... | Amicus Therapeutics Announces Positive Preliminary Data from Phase 1/2 Study of Novel Treatment Paradigm for Pompe Disease |
/news/594-10-years-of-enzyme-replacement-therapy | 10 Years of Enzyme Replacement Therapy |
/news/593-neogaa-phase-3-trial-begins | NeoGAA Phase 3 Trial Begins |
/73-ipa/592-statement-from-ipa-on-biomarin | Statement from IPA on Biomarin |
/news/591-biomarin-update-for-the-pompe-community | BioMarin Update for the Pompe Community |
/news/590-ipa-statement-on-biomarin-s-june-9th-announcement-... | IPA Statement on Biomarin's June 9th announcement it will seek to out-license BMN-701 |
/news/589-the-walker-society-a-beneficiary-research-fund-in-... | The Walker Society – a beneficiary research fund in honour of Helen Walker |
/international-pompe-day/588-2016-international-pompe-day-ar... | 2016 International Pompe Day Art Contest: Results |
/international-pompe-day/585-press-release-international-pom... | Press Release: International Pompe Day 2016 - Early Diagnosis |
/international-pompe-day/587-celebrating-the-pompe-disease-c... | Celebrating the Pompe Disease Community |
/news/581-sanofi-genzyme-presents-results-from-phase-1-2-stu... | Sanofi Genzyme Presents Results from Phase 1/2 Study of Investigational Second-Generation Therapy for Pompe Disease |
/news/582-biomarin-announces-interim-analysis-of-inspire-cli... | BioMarin Announces Interim Analysis of INSPIRE Clinical Trial in Pompe Disease at 34th Annual J.P. Morgan Annual Healthcare Conf... |
/news/580-amicus-therapeutics-commences-phase-1-2-study-of-n... | Amicus Therapeutics Commences Phase 1/2 Study of Novel ERT for Treatment of Pompe Disease |
/news/579-the-swiss-pompe-group | The Swiss Pompe Group |
/news/577-2015-amda-international-pompe-patient-and-scientif... | 2015 AMDA International Pompe Patient and Scientific Conference - Summary Report |
/news/576-pompe-registry-a-decade-of-making-a-difference | Pompe Registry - A Decade of Making a Difference |
/news/575-amdaipa-pompe-conference-on-twitter | #AMDAIPA Pompe Conference on Twitter |
/news/574-australia-has-admitted-life-saving-drug-for-pompe-... | Australia has admitted life-saving drug for Pompe disease in the Australian Life-Saving Drug Programme |
/news/572-visit-to-the-world-war-ii-commemoration-monument-i... | Visit to the World War II Commemoration Monument in Saint Pancras (The Netherlands) |
/news/571-registration-is-now-open-for-the-2015-internationa... | Registration is now open for the 2015 International Pompe Patient and Scientific Conference |
/news/566-genzyme-pompe-community-program-update | Genzyme Pompe Community Program Update |
/news/559-amicus-therapeutics-honors-fabry-disease-awareness... | Amicus Therapeutics Honors Fabry Disease Awareness Month and International Pompe Day |
/news/554-poll-ipd-fundraiser-ideas-2015 | Poll: IPD Fundraiser Ideas 2015 |
/news/552-abstracts-from-the-7th-european-symposium-on-steps... | Abstracts from the 7th European Symposium on Steps Forward in Pompe Disease 2014 |
/news/549-australia-approves-treatment-for-young-australians... | Australia Approves Treatment for Young Australians with Pompe Disease |
/news/551-amicus-therapeutics-presents-preclinical-data-on-n... | Amicus Therapeutics Presents Preclinical Data on Next-Generation Pompe ERT at WORLDSymposium(TM) 2015 |
/news/542-call-for-participation-in-the-pompe-em-power-proje... | Call for Participation in the Pompe (Em)Power Project |
/news/545-a-wonderful-fund-raising-every-life-counts-charity... | A Wonderful Fund Raising 'Every Life Counts' Charity Dinner Graced by Negeri Sembilan's King and Queen |
/news/541-ipa-statement-and-clarification-on-potential-new-p... | IPA Statement and Clarification on Potential New Production Method Mentioned in Dutch Interview |
/news/538-australian-pompe-s-association-held-its-first-nati... | Australian Pompe’s Association held its first National patient and family support forum in Melbourne |
/news/535-enmc-workshop-on-pompe-disease | ENMC workshop on Pompe Disease |
/news/533-international-pompe-day-commemorative-book-now-ava... | International Pompe Day Commemorative Book Now Available! |
/news/531-ipas-pompe-m-powerpilot-project-recipient-of-genzy... | IPA's Pompe M-PowerPilot Project Recipient of Genzyme's 4th Annual PAL Award |
/news/529-donation-received-from-turkish-charity-fund | Donation Received from Turkish Charity Fund |
/news/528-expression-of-hope-iii | Expression of Hope III |
/news/527-new-chairwoman-for-international-pompe-association | New Chairwoman for International Pompe Association |
/news/525-resounding-success-international-pompe-day-2014 | Resounding Success International Pompe Day 2014 |
/news/522-carine-van-capelle-receives-phd-with-her-thesis-of... | Carine van Capelle receives PhD with her thesis of Children with Pompe disease: clinical characteristics, peculiar features and ... |
/news/520-linda-van-den-berg-receives-phd-with-her-thesis-on... | Linda van den Berg receives PhD with her thesis on 'The Musculoskeletal System in Pompe Disease - Pathology, consequences and tr... |
/news/518-juna-de-vries-receives-phd-on-natural-course-effec... | Juna de Vries receives PhD on Natural course, effects of enzyme therapy and prognostic factors in adults with Pompe disease |
/news/517-first-tree-planted-in-pompe-garden-in-warsaw | First tree planted in Pompe Garden in Warsaw |
/news/516-attention-for-pompe-disease-in-russian-newspaper | Attention for Pompe Disease in Russian newspaper |
/news/514-hero-award-for-malaysian-lsd-association-president... | Hero Award for Malaysian LSD Association President Ir. YeeSeng Lee |
/news/512-raising-awareness-with-social-media-on-internation... | Raising Awareness with social media on International Pompe Day in Australia |
/news/510-poland-and-italy-celebrate-international-pompe-day | Poland and Italy celebrate International Pompe Day |
/news/508-international-pompe-day-2014 | International Pompe Day 2014 |
/news/506-soccer-team-rcd-espanyol-supports-international-po... | Soccer Team RCD Espanyol supports International Pompe Day |
/news/505-colombian-lsd-association-acopel-participates-in-i... | Colombian LSD Association (ACOPEL) participates in International Pompe Day |
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/?start=72 | End |
/index.php/about-us/ipa-members-and-contacts | IPA Members and Contacts |
/index.php/publications/category/2-pompeconnections | PompeConnections |
/index.php/publications/category/3-treatment-edition | Treatment Edition |
/index.php/pompe-disease/clinical-trials | Clinical Trials |
Domain Name: WORLDPOMPE.ORG
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