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Bad Glue | Ex-librarian with Ehlers Danlos Syndrome & Postural Tachycardia Syndrome
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Ex-librarian with Ehlers Danlos Syndrome & Postural Tachycardia Syndrome
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Внешние ссылки главной страницы ( 239 ) | |
ghr.nlm.nih.gov/condition/ehlers-danlos-syndrome | Ehlers-Danlos syndrome |
dinet.org/pots_an_overview.htm | Postural Orthostatic Tachycardia syndrome |
mc.vanderbilt.edu/root/vumc.php?site=adc | Vanderbilt Autonomic Clinic |
ncbi.nlm.nih.gov/pmc/articles/PMC3542934/ | Genetic dissection of marfan syndrome and related connective tissue disorders: an update 2012. |
ncbi.nlm.nih.gov/pubmed/22721633 | Gynecologic disorders and menstrual cycle lightheadedness in postural tachycardia syndrome. |
videocast.nih.gov/summary.asp?live=12444 | Rare Disease Day at NIH 2013 (Day 1) |
videocast.nih.gov/summary.asp?live=12446 | Rare Disease Day at NIH 2013 (Day 2) |
dailymail.co.uk/health/article-2263768/Ehler-Danlos-syndrome... | The young woman who dislocates her shoulder every time she SNEEZES… up to 10 times a day |
gruntdoc.com/2013/01/dont-open-wide-annual-check-ups-are-pre... | Don’t open wide: Annual check-ups are pretty much useless |
buffalonews.com/apps/pbcs.dll/article?AID=/20130115/CITYANDR... | Jury acquits woman of vehicular manslaughter in Riverside death |
ncbi.nlm.nih.gov/pmc/articles/PMC3545343/ | Stress urinary incontinence as the presenting complaint of benign joint hypermobility syndrome |
pressdemocrat.com/article/20130120/ARTICLES/130129980 | Santa Rosa couple’s love persists throughout health scares |
parisstaronline.com/2013/01/18/the-pain-is-still-there | ‘The pain is still there’ |
ncbi.nlm.nih.gov/pubmed/22185354 | Pregnancy in postural tachycardia syndrome: clinical course and maternal and fetal outcomes. |
ncbi.nlm.nih.gov/pubmed/23284009 | Tenascin-X Haploinsufficiency Associated with Ehlers-Danlos Syndrome in Patients with Congenital Adrenal Hyperplasia. |
ncbi.nlm.nih.gov/pmc/articles/PMC3003457/ | The Collagen Family |
videocast.nih.gov/summary.asp?live=12411 | Demystifying Medicine 2013-Ticks: Lyme and Other Diseases |
onlinelibrary.wiley.com/doi/10.1111/anae.12048/pdf | Anaesthesia for vascular emergencies |
nytimes.com/2013/01/11/nyregion/new-york-city-to-restrict-po... | New York City to Restrict Prescription Painkillers in Public Hospitals’ Emergency Rooms |
msnbc.msn.com/id/31664450/ns/health-health_care/t/fda-panel-... | FDA panel votes to eliminate Vicodin, Percocet |
onlinelibrary.wiley.com/doi/10.1111/j.1600-0757.2011.00400.x... | Decreased bone mineral density and periodontal management |
onlinelibrary.wiley.com/doi/10.1002/mus.23482/full | Neuromuscular properties of the thigh muscles in patients with ehlers–danlos syndrome |
ncbi.nlm.nih.gov/pubmed/23283362 | Nitric Oxide and Regulation of Heart Rate in Patients With Postural Tachycardia Syndrome and Healthy Subjects. |
ncbi.nlm.nih.gov/pubmed/23312833 | Treatment of a patient with vertebral and subclavian aneurysms in the setting of a TGFBR2 mutation. |
ncbi.nlm.nih.gov/pubmed/23291504 | Clinical heterogeneity in patients with the hypermobility type of Ehlers-Danlos Syndrome. |
ncbi.nlm.nih.gov/pmc/articles/PMC3528216/ | Thoracic Aortic Dissection |
ncbi.nlm.nih.gov/pmc/articles/PMC3536932/ | Tissue-Specific Responses to Loss of Transglutaminase 2 |
ncbi.nlm.nih.gov/pubmed/23286971 | Midterm Results of David Reimplantation in Patients With Connective Tissue Disorder. |
ehlers-danlos.org/index.php/online-shop/books/the-management... | The Management of Ehlers-Danlos Syndrome |
upliftingathletes.org/rare-disease-champion/vote | Vote: The Rare Disease Champion Award |
bbc.co.uk/news/uk-wales-north-east-wales-20926539 | Limb dislocation: Phoebe Bruce’s Ehlers-Danlos syndrome treatment |
prettyill.com/videos/watch/dysautonomia_and_vascular_abnorma... | Dysautonomia and Vascular Abnormalities |
content.karger.com/ProdukteDB/produkte.asp?Aktion=ShowPDF&Ar... | Letter to the Editor: Surgical Recommendations in Ehlers-Danlos Syndrome(s) Need Patient Classification: The Example of Ehlers... |
content.karger.com/ProdukteDB/produkte.asp?Aktion=ShowPDF&Ar... | Letter to the Editor Reply: Surgical Recommendations in Ehlers-Danlos Syndrome(s) Need Patient Classification: The Example of Eh... |
futuremedicine.com/doi/abs/10.2217/pmt.12.78 | Treatment of myofascial pain |
uab.edu/news/latest/item/3011-uab-study-finds-optimism-benef... | UAB study finds optimism benefits pain sufferers |
sciencedirect.com/science/article/pii/S0741521412021118 | The fibrillin-1 hypomorphic mgR/mgR murine model of Marfan syndrome shows severe elastolysis in all segments of the aorta |
articles.philly.com/2012-12-17/news/35852671_1_fatale-open-m... | The Bellmawr resident writes edgy, melodic rock songs with titles like “Palinopsia,” the name for an optical disturbance that’s ... |
ktvz.com/news/Prineville-family-seeks-man-s-best-friend-to-a... | The family is trying to raise $13,000 to buy a specially trained dog from “4 Paws for Ability.” |
mirror.co.uk/money/jobs/baby-peach-eco-nappy-business-inspir... | Emily Skerrett was left disabled after two pregnancies – but it did not stop her founding her own business providing reusable na... |
openi.nlm.nih.gov/gridquery.php?q=Ehlers%20Danlos%20Syndrome... | NIH Image Library |
openi.nlm.nih.gov/query.php?q=postural%20tachycardia&atab=2 | NIH Image Library |
researchgate.net/publication/230996091_Deconditioning/file/9... | Deconditioning in patients with orthostatic intolerance |
wscountytimes.co.uk/news/health/david-cameron-got-involved-a... | ‘David Cameron got involved and council’s attitude to care changed’ |
au.news.yahoo.com/today-tonight/latest/article/-/15717003/th... | The heroes of 2012 |
dailypost.co.uk/news/north-wales-news/2012/12/28/hawarden-te... | Hawarden teenager who suffers up to 18 limb dislocations to get specialist help |
ncbi.nlm.nih.gov/pmc/articles/PMC3257894/ | COL4A2 Mutations Impair COL4A1 and COL4A2 Secretion and Cause Hemorrhagic Stroke |
ncbi.nlm.nih.gov/pubmed/23270259 | [A case of postural orthostatic tachycardia syndrome (POTS) with difficulties in differentiation from hypoglycemic attack]. |
liu.diva-portal.org/smash/get/diva2:575004/FULLTEXT01 | Influence of Genetics and Mechanical Properties on Large Arteries in Man |
videocast.nih.gov/summary.asp?live=12318 | The cell biology of genomes: From fundamentals to disease |
videocast.nih.gov/summary.asp?live=12338 | Navigating the cellular landscape with new optical probes, imaging strategies and technical innovations |
peachypains.com/2012/12/21/hope/ | HOPE. I have HOPE. |
videocast.nih.gov/summary.asp?live=12334 | Genetic therapies for genetic disease: Results and lessons from recent successes |
videocast.nih.gov/summary.asp?live=12332 | ABC transporters: Nature’s favorite pump |
danielledaviseds.blogspot.com/2012/12/best-ankle-braces-ever... | Best Ankle Braces Ever |
ncbi.nlm.nih.gov/pmc/articles/PMC3523233/ | Sympathetic nervous system activity in health and disease—advances with microneurographic recordings |
rspa.royalsocietypublishing.org/content/469/2150/20120556.sh... | Parametric study of effects of collagen turnover on the natural history of abdominal aortic aneurysms |
onlinelibrary.wiley.com/doi/10.1111/1471-0528.12082/full | Prolapse and sexual function in women with benign joint hypermobility syndrome |
ncbi.nlm.nih.gov/pubmed/23277208 | Concentric visual field defect related to spontaneous intracranial hypotension. |
link.springer.com/chapter/10.1007%2F978-1-4614-4921-8_1?LI=t... | Nanomechanics of Proteins, Both Folded and Disordered |
hudsonvalley.ynn.com/content/top_stories/622950/boy-spreads-... | A young Saugerties boy diagnosed with a rare syndrome that results in regular ER visits got bored during hospital stays and deci... |
fda.gov/Drugs/DrugSafety/ucm330049.htm | FDA Drug Safety Communication: Updated information on 32 mg intravenous ondansetron (Zofran) dose and pre-mixed ondansetron prod... |
fda.gov/Safety/Recalls/ucm331218.htm | Qualitest Issues Voluntary, Nationwide Recall of 101 Lots of Hydrocodone Bitartrate and Acetaminophen Tablets, Usp 10 Mg/500 Mg ... |
nytimes.com/2012/12/16/nyregion/a-disease-threatens-a-womans... | A Disease Threatens a Woman’s Eyesight and Art |
wcnc.com/on-tv/Larrys-Look---183943831.html | Local girl gets special wish |
torontosun.com/2012/11/23/parents-appeal-to-province-to-cove... | Parents appeal to province to cover daughter, Erika Crawford’s life-saving surgery |
ottawasun.com/2012/11/27/ehlers-danlos-syndrome-sufferer-wal... | Ehlers Danlos Syndrome sufferer walking upright after Maryland surgery |
plosone.org/article/info%3Adoi%2F10.1371%2Fjournal.pone.0051... | Gene Expression Analysis of the Pleiotropic Effects of TGF-β1 in an In Vitro Model of Flexor Tendon Healing |
ncbi.nlm.nih.gov/pmc/articles/PMC3461657/ | Successful Coronary Artery Bypass in Ehlers-Danlos Type IV Syndrome Case Report and Review of the Literature |
ncbi.nlm.nih.gov/pmc/articles/PMC3489013/ | Impact of Mendelian Inheritance in Cardiovascular Disease |
sciencedirect.com/science/article/pii/S0891422212002880 | Measuring regularity of human postural sway using approximate entropy and sample entropy in patients with Ehlers-Danlos syndrome... |
autonomicneuroscience.com/article/S1566-0702(12)00230-5/abst... | Postural orthostatic tachycardia syndrome associated with multiple sclerosis. |
ncbi.nlm.nih.gov/pubmed/23110270 | Women with Ehlers-Danlos syndrome experience low oral health-related quality of life |
onlinelibrary.wiley.com/doi/10.1111/j.1442-9071.2012.02804.x... | Familial retinal detachment associated with COL2A1 exon 2 and FZD4 mutations. |
ncbi.nlm.nih.gov/pubmed/22739942 | [Postural orthostatic tachycardia syndrome (POTS): report of 15 cases]. |
ncbi.nlm.nih.gov/pubmed/23244360 | Update on the theory and management of orthostatic intolerance and related syndromes in adolescents and children. |
ncbi.nlm.nih.gov/pubmed/23116480 | Predictors of orthostatic hypotension in patients attending a transient ischaemic attack clinic: Database study |
casereports.bmj.com/content/2012/bcr-2012-007435.abstract | Type IV Ehlers-Danlos syndrome presenting as recurrent, bilateral carotid dissections |
ncbi.nlm.nih.gov/pubmed/23122672 | Postural tachycardia syndrome: a heterogeneous and multifactorial disorder. |
ncbi.nlm.nih.gov/pmc/articles/PMC3489550/ | The role of benign joint hypermobility in the pain experience in Juvenile Fibromyalgia: an observational study |
ncbi.nlm.nih.gov/pmc/articles/PMC3488326/ | Efficacy of manual therapy treatments for people with cervicogenic dizziness and pain: protocol of a randomised controlled trial |
ncbi.nlm.nih.gov/pmc/articles/PMC3516802/ | The Arterial Baroreflex Resets with Orthostasis |
springerlink.com/index/r8122638623u6506.pdf | Cerebrovascular autoregulation: lessons learned from spaceflight research. |
ncbi.nlm.nih.gov/pubmed/23130612 | Immunolocalization of Different Collagens in the Cornea of Human Fetal Eyes: A Developmental Approach. |
hindawi.com/isrn/dermatology/2012/751768/ | Ehlers-Danlos Syndrome, Hypermobility Type: An Underdiagnosed Hereditary Connective Tissue Disorder with Mucocutaneous, Articula... |
ncbi.nlm.nih.gov/pubmed/23220557 | Direct Assessment of Articular Cartilage and Underlying Subchondral Bone Reveals a Progressive Gene Expression Change in Human O... |
biomedcentral.com/content/pdf/1471-2415-12-47.pdf | Severe conjunctivochalasis in association with classic type Ehlers-Danlos syndrome |
nature.com/milestones/skinbio5/full/skinbio20123a.html | Heritable collagen disorders: the paradigm of the ehlers-danlos syndrome |
ncbi.nlm.nih.gov/pmc/articles/PMC3495043/ | Spontaneous dissection of the coronary and vertebral arteries post-partum: case report and review of the literature |
link.springer.com/article/10.1007%2Fs12264-012-1282-y | Compromised cerebrovascular modulation in chronic anxiety: evidence from cerebral blood flow velocity measured by transcranial D... |
rareconnect.org/en/community/ehlers-danlos-syndrome/article/... | My Wife Had EDS and Did Not Know it! |
ruthcheesley.co.uk/general/living-and-working-with-ehlers-da... | Living and working with Ehlers Danlos Syndrome/Hypermobility Syndrome |
jstage.jst.go.jp/article/internalmedicine/51/22/51_51.7778/_... | Low Bone Mass in Ehlers-Danlos Syndrome |
ncbi.nlm.nih.gov/pmc/articles/PMC3500187/ | Evolutionary divergence and functions of the ADAM and ADAMTS gene families |
ncbi.nlm.nih.gov/pmc/articles/PMC3495381/ | Exploiting potency of negative pressure in wound dressing using limited access dressing and suction-assisted dressing |
epmonthly.com/whitecoat/2012/12/a-physician-tries-to-make-se... | A Physician Tries to Make Sense of Sandy Hook |
ncbi.nlm.nih.gov/pmc/articles/PMC3499978/ | Lysine post-translational modifications of collagen |
onlinelibrary.wiley.com/doi/10.1111/j.1440-0960.2011.00869.x... | A case of mosaic Ehlers–Danlos syndrome |
ijponline.net/content/38/1/65/abstract | Cardiac valve disease: an unreported feature in Ehlers Danlos syndrome arthrocalasia type? |
ncbi.nlm.nih.gov/pmc/articles/PMC3512326/ | Ehlers-Danlos Syndrome, Hypermobility Type: An Underdiagnosed Hereditary Connective Tissue Disorder with Mucocutaneous, Articula... |
ncbi.nlm.nih.gov/pmc/articles/PMC3513320/ | The Dermatan Sulfate Proteoglycan Decorin Modulates α2β1 Integrin and the Vimentin Intermediate Filament System during Collagen ... |
ncbi.nlm.nih.gov/pmc/articles/PMC3505562/ | A pictorial review of acute aortic syndrome: discriminating and overlapping features as revealed by ECG-gated multidetector-row ... |
ncbi.nlm.nih.gov/pubmed/23164021 | Laparoscopic management of colonic complications in Ehlers-Danlos syndrome type IV. |
ncbi.nlm.nih.gov/pmc/articles/PMC3500721/ | Chronic Cough in Musculoskeletal disorders: Using high resolution oesophageal manometry in search of an Aetiology |
thieme-connect.com/DOI/DOI?10.1055/s-0032-1325774 | Video capsule endoscopy findings in Ehlers-Danlos syndrome with recurrent gastrointestinal bleeding. |
researchgate.net/publication/223467327_Ehlers-Danlos_Syndrom... | Ehlers-Danlos syndrome, vascular type: A novel missense mutation in the COL3A1 gene. |
ncbi.nlm.nih.gov/pubmed/23169204 | Neuromuscular properties of the thigh muscles in patients with ehlers-danlos syndrome. |
ncbi.nlm.nih.gov/pmc/articles/PMC3452297/pdf/10194_2005_Arti... | Ehlers–Danlos syndrome: correlation with headache disorders in a young woman |
ncbi.nlm.nih.gov/pmc/articles/PMC3476180/ | Absence of TGFBR2 mutations in patients with spontaneous spinal CSF leaks and intracranial hypotension |
clinsci.org/cs/124/cs1240109.htm | Diagnosing postural tachycardia syndrome: comparison of tilt testing compared with standing haemodynamics. |
onlinelibrary.wiley.com/doi/10.1111/joim.12021/abstract | Syndromes of orthostatic intolerance: a hidden danger. |
ncbi.nlm.nih.gov/pubmed/21792643 | Evaluation of lower limb disability in joint hypermobility syndrome. |
ncbi.nlm.nih.gov/pmc/articles/PMC3505421/ | Eponymous signs in dermatology |
ncbi.nlm.nih.gov/pmc/articles/PMC3476196/ | Similarities in stress physiology among patients with chronic pain and headache disorders: evidence for a common pathophysiologi... |
ncbi.nlm.nih.gov/pmc/articles/PMC3508006/ | Comprehensive analysis of LAMC1 genetic variants in advanced pelvic organ prolapse |
ncbi.nlm.nih.gov/pmc/articles/PMC3223528/ | Electromyographic activity of pelvic and lower limb muscles during postural tasks in people with benign joint hypermobility synd... |
ncbi.nlm.nih.gov/pmc/articles/PMC3457722/ | Massage Therapy for Cervical Degenerative Disc Disease: Alleviating a Pain in the Neck? |
onlinelibrary.wiley.com/doi/10.1111/joim.12022/abstract | Clinical characteristics of a novel subgroup of chronic fatigue syndrome patients with postural orthostatic tachycardia syndrome |
ncbi.nlm.nih.gov/pmc/articles/PMC3503476/ | Fibromyalgia Syndrome: Etiology, Pathogenesis, Diagnosis, and Treatment |
ncbi.nlm.nih.gov/pmc/articles/PMC3507119/ | Obstructive Sleep Apnea Hypopnea Syndrome |
ncbi.nlm.nih.gov/pmc/articles/PMC3506997/ | Norepinephrine: the next therapeutics frontier for Parkinson’s disease |
ncbi.nlm.nih.gov/pmc/articles/PMC3452295/ | Headache in cerebral venous thrombosis: incidence, pattern and location in 200 consecutive patients |
ncbi.nlm.nih.gov/pubmed/23212662 | Abnormal gastric myoelectrical activity in postural tachycardia syndrome. |
annalsofvascularsurgery.com/article/S0890-5096(12)00190-2/ab... | Endovascular Repair of an Iliac Arteriovenous Fistula Secondary to Perforation From a Common Iliac Aneurysm in a Patient With Eh... |
pnas.org/content/109/51/E3530.abstract | Promotion of vesicular zinc efflux by ZIP13 and its implications for spondylocheiro dysplastic Ehlers-Danlos syndrome. |
ncbi.nlm.nih.gov/pubmed/22191544 | Differences in motor and cognitive function in patients with Parkinson’s disease with and without orthostatic hypotension. |
ncbi.nlm.nih.gov/pmc/articles/PMC3517532/ | Suppression of cardiocirculatory responses to orthostatic stress by passive walking-like leg movement in healthy young men |
ncbi.nlm.nih.gov/pubmed/22568544 | Pectus excavatum and MASS phenotype: an unknown association. |
journals.lww.com/amjdermatopathology/Abstract/publishahead/L... | Light and Electron Microscopy of Classical Ehlers-Danlos Syndrome |
onlinelibrary.wiley.com/doi/10.1111/hae.12020/abstract;jsess... | Suspected collagen disorders in the bleeding disorder clinic: A case–control study |
jbc.org/content/early/2012/10/11/jbc.M112.406850.long | Comprehensive Mass Spectrometric Mapping of the Hydroxylated Amino Acid residues of the α1(V) Collagen Chain. |
jpeds.com/article/S0022-3476%2812%2900112-6/abstract | Twenty-Four-Hour Urinary Sodium Excretion and Postural Orthostatic Tachycardia Syndrome |
ncbi.nlm.nih.gov/pubmed/23032111 | Vascular and connective tissue anomalies associated with X-linked periventricular heterotopia due to mutations in Filamin A. |
ncbi.nlm.nih.gov/pmc/articles/PMC3480234/ | Pulmonary Circulation at Exercise |
atvb.ahajournals.org/content/32/8/1910.short | Epigenetic modification of the norepinephrine transporter gene in postural tachycardia syndrome. |
ncbi.nlm.nih.gov/pubmed/23046517 | Modified Calgary score in differential diagnosis between cardiac syncope and postural orthostatic tachycardia syndrome-associate... |
ncbi.nlm.nih.gov/pmc/articles/PMC3471064/ | Dermal Ultrastructure in Low Beighton Score Members of 17 Families with Hypermobile-Type Ehlers-Danlos Syndrome |
journal.publications.chestnet.org/article.aspx?articleid=137... | Spontaneous Bilateral Hemothoraces in Type IV Ehlers-Danlos Syndrome |
ncbi.nlm.nih.gov/pubmed/22813609 | Midregional pro-adrenomedullin as a predictor for therapeutic response to midodrine hydrochloride in children with postural orth... |
ncbi.nlm.nih.gov/pubmed/23095510 | Gastrointestinal Surgery and Related Complications in Patients with Ehlers-Danlos Syndrome: A Systematic Review. |
ncbi.nlm.nih.gov/pubmed/22795533 | A prospective, 1-year follow-up study of postural tachycardia syndrome. |
ncbi.nlm.nih.gov/pmc/articles/PMC3460154/ | Melatonin does not attenuate dynamic cardiovascular and cerebrovascular reflex responses to acute hypotension in healthy men |
books.google.com/books?hl=en&lr=&id=XU-g4tm7bEoC&oi=fnd&pg=P... | Pediatric Heart Disease: A Clinical Guide |
sciencedirect.com/science/article/pii/S2211558712000556 | Ehlers-Danlos with disease of the aorta and mitral valve |
springerlink.com/content/t48j0g1547405v58/fulltext.html | Occlusive vascular Ehlers–Danlos syndrome accompanying a congenital cystic adenomatoid malformation of the lung: report of a cas... |
ncbi.nlm.nih.gov/pmc/articles/PMC3441102/ | distinguishing between the phenotypes of Marfan syndrome and Loeys-Dietz syndrome is sometimes not possible, especially when the... |
211.144.68.84:9998/91keshi/Public/File/3/64-5/pdf/21592_ftp.... | Muscle–tendon tissue properties in the hypermobility type of Ehlers‐Danlos syndrome |
ajrapp.arrs.org/arrs.ajr/198/2/10_2214-AJR_11_6603.html | Vascular Complications of Ehlers-Danlos Syndrome: CT Findings |
bendybeth.blogspot.com/2012/09/my-experience-at-paralympics.... | My experience at the Paralympics |
bobisdysautonomia.blogspot.com/2012/09/well-mrs-r-it-seems-y... | Well Mrs R, it seems you have a bad case of FUBAR. |
videocast.nih.gov/summary.asp?live=11960 | NIH Director’s Wednesday Afternoon Lecture Series: October 3, 2012 “Mitochondria: dynamic organelles critical for human health” |
danielledaviseds.blogspot.com/2012/09/calling-all-woman-hate... | Calling All Woman Haters |
stoppotsvirginia.blogspot.com/2012/09/pots-basics.html | POTS: The Basics |
prettyill.com/videos/watch/diagnosing_dysautonomia | Video: Diagnosing Dysautonomia!, Dr. Diana |
ncbi.nlm.nih.gov/pmc/articles/PMC3445168/ | Evaluation and Management of Posterior Shoulder Instability |
ncbi.nlm.nih.gov/pmc/articles/PMC3459649/ | COL4A1 and COL4A2 mutations and disease: insights into pathogenic mechanisms and potential therapeutic targets |
ncbi.nlm.nih.gov/pmc/articles/PMC3289944/ | Porous Collagen Scaffold Reinforced with Surfaced Activated PLLA Nanoparticles |
ncbi.nlm.nih.gov/pmc/articles/PMC3430451/ | Fascia: a morphological description and classification system based on a literature review |
ncbi.nlm.nih.gov/pmc/articles/PMC3449275/ | Learning on Jupiter, learning on the Moon: the dark side of the G-force. Effects of gravity changes on neurovascular unit and mo... |
ncbi.nlm.nih.gov/pmc/articles/PMC3446814/ | Mitochondrial Mutations are Associated with Atherosclerotic Lesions in the Human Aorta |
eurordis.org/publication/voice-12000-patients | *** Online book: The Voice of 12,000 Patients: Experiences & Expectations of Rare Disease Patients on Diagnosis & Care in Europe... |
amazinartyantics.blogspot.com/ | Amazin Arty Adventures |
bbc.co.uk/ouch/ | BBC Ouch! Podcast |
becauseitallmatters1909.blogspot.com/ | because it all matters |
bellaflorablog.blogspot.com/ | Bella Flora |
bendybeth.blogspot.com/ | Bendy Beth |
benefitscroungingscum.blogspot.com/ | Benefit Scrounging Scum |
loveablehomebody.blogspot.com/ | Beyond Passing Time |
brilliantmindbrokenbody.wordpress.com/ | Brilliant Mind Broken Body |
craftycookery.wordpress.com/ | Crafty Cookery from The Sensitive Witch |
cranberryteatime.com/ | Cranberry Tea Time |
delivermeministries.org/ | Deliver Me Ministries |
discodisabilityconversations.blogspot.com/ | DisCo: Disability Conversations |
richboden.com/ | Dr. Rich Boden |
dinet.org/ | Dysautonomia Information Network (DINET) |
dysautonomiamd.blogspot.com/ | Dysautonomia MD |
michele-dysautonomianormal.blogspot.com/ | Dysautonomia Normal |
mirandapowell.blogspot.com/ | Dysautonomia: My Journey, My Battle, My Victory, My Life |
ednf.org | EDNF |
edsalert.wordpress.com | EDS Alert |
clinicaltrials.gov/ct2/results?term=ehlers+danlos+syndrome&r... | EDS Clinal Trials (Open) |
clinicaltrials.gov/ct2/show/NCT00270686 | EDS Clinical Trial |
twitter.com/#!/jilly/ehlers-danlos-illness | EDS Folks on Twitter |
ehlers-danlos.org | EDS UK |
helpme-minx.blogspot.com/ | Ehlers-Danlos Syndrome and Gastroparesis |
b-u-b-b-l-e-girl.blogspot.com/ | Ehlers-Danlos Syndrome-Deal With It |
elsaelsa.com/ | Elsa Elsa |
endthehurts.com/ | End The Hurts |
everydaysyndrome.com/ | Every Day Syndrome |
jesshaseds.blogspot.com/ | Falling Apart At The Seams: My Life With Ehlers-Danlos |
familialdysautonomia.org/ | Familial Dysautonomia Foundation |
flexabilityandcreativity.blogspot.com/ | Flexibility is over-rated, creativity is ingenious |
dysautonomic.blogspot.com/ | Fluted Cups & Ampersands |
fragileannie.com/ | Fragile Annie |
gimpyzebra.wordpress.com/ | Genetically Incorrect |
irishdysautonomia.wordpress.com/ | Irish Dysautonomia Awareness |
krisgetshealthy.com/ | Kris Gets Healthy |
liamack.blogspot.com/ | Lia Mack |
livinglifefromabed.com/ | Living life from a bed |
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