Основные показатели сайта
| Возраст домена | 24 года |
| Дата окончания | Истек срок регистрации |
| PR | 6 |
| ИКС | 20 |
| Страниц в Google | 8440 |
| Страниц в Яндексе | 700 |
| Dmoz |  Да |
| Яндекс Каталог | Нет |
| Alexa Traffic Rank | 978759 |
| Alexa Country |  1000877 |
| История изменения показателей | Авторизация |
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Анализ сайта
Title
EURORDIS - The Voice of Rare Disease Patients in Europe
Keywords
n/a
Description
EURORDIS - Rare Diseases Europe, is a non-governmental patient-driven alliance of rare disease patient organisations representing 869 rare diseases patient organisations in 71 countries. We are dedicated to improving the quality of life of all people living with rare diseases in Europe
Кодировка
UTF-8
Размер страницы
55.69 КБ
Количество слов
406
Длина текста на странице
3 161 симв.
Длина текста без пробелов
2 673 симв.
<H1>
- in Europe
<H2>
- Languages
- >> Rare disease patient advocates & sponsors come together to co-produce clinica...
- >> From concept to reality: true patient partnership in ERNs
- >> UN human rights body stresses need to address rare diseases within universal ...
- >> Noémie, performer from the 2019 EURORDIS Black Pearl Awards, tells her story
- Out now: new scientific analysis of prevalence confirms 300m people affected by ...
- Intimate Audrey Exhibition 1 November 2019 - 31 January 2020, Amsterdam
- Rare Diseases included in UN Universal Health Coverage Political Declaration
- New call open for healthcare providers (HCPs) to join the 24 European Reference ...
- Submit a poster abstract for the European Conference on Rare Diseases & Orphan P...
- European Patient Summit on Idiopathic Pulmonary Fibrosis & Interstitial Lung Dis...
- Who we are
- EURORDIS TV
- Social Media
- News
- EURORDIS.org at a glance
<H3>
- RareConnect.org online communities
Анализ текста
- 5.91% ( 24 ) disease
- 5.67% ( 23 ) rare
- 3.20% ( 13 ) europe
- 2.96% ( 12 ) eurordis
- 2.71% ( 11 ) patient
- 1.97% ( 8 ) with
- 1.72% ( 7 ) more
- 1.48% ( 6 ) read
- 1.23% ( 5 ) living
- 0.99% ( 4 ) about
- 0.99% ( 4 ) from
- 0.99% ( 4 ) join
- 0.99% ( 4 ) people
- 0.99% ( 4 ) voice
- 0.74% ( 3 ) contact
- 0.74% ( 3 ) experiences
- 0.74% ( 3 ) health
- 0.74% ( 3 ) initiative
- 0.74% ( 3 ) international
- 0.74% ( 3 ) news
Данные предоставлены сервисом semrush
| Сайт | Общие фразы | PR | тИЦ | Alexa Rank | Alexa Country | |
|---|---|---|---|---|---|---|
 rarediseases.org |
148 | 7 |
20 | 65026 |  15904 | |
| globalgenes.org |
92 | 5 |
0 | 315978 | 124509 | |
| rarediseaseday.org |
51 | 6 |
0 | 1176425 | 460438 | |
| rarediseaseday.us |
46 | 6 |
0 | 16566464 |  Нет данных |
|
| raredisease.org.uk |
30 | 5 |
0 | 6355772 | Нет данных |
|
| rarediseasefoundation.org |
27 | 4 |
0 | 5400368 | Нет данных |
|
| madisonsfoundation.org |
19 | 5 |
0 | 3362881 | 1101014 | |
| stiffpersonsyndrome.info |
13 | 1 |
0 | 15050479 | Нет данных |
|
| raredisease.org |
12 | 4 |
0 | 14391682 | Нет данных |
|
| rare-diseases.eu |
11 | 5 |
10 | 6563418 | Нет данных |
|
| wikipedia.org |
9 | 9 |
0 | 5 | 6 | |
| academic.ru |
4 | 7 |
0 | 1289 | 106 | |
| tripadvisor.ru |
3 | 8 |
0 | 2315 | 273 | |
| medluki.ru |
2 | 2 |
40 | 1977405 | 154413 | |
| medee.ru |
2 | 2 |
0 | 4927929 | 315057 | |
| humbio.ru |
2 | 4 |
0 | 131047 | 17401 | |
| happymozg.ru |
2 | 4 |
40 | 344980 |  5399 | |
| dolgojit.net |
2 | 1 |
0 | 313088 | 26846 | |
| strath.ac.uk |
2 | 8 |
150 | 18676 |  1103 | |
| ec.europa.eu |
2 | 9 |
0 | 681 |  172 | |
| Еще 30 сайтов после авторизации | ||||||
Данные предоставлены сервисом semrush
| Счетчик | Посетители за 24 часа | Просмотры | Просмотров на посетителя |
|---|---|---|---|
 Google Analytics | Нет доступа | Нет доступа | n/a |
| Данные linkpad ( 11 Мая 2014 ) | |
| Количество ссылок на сайт | 12382 |
| Количество доменов, которые ссылаются на сайт | 889 |
| Количество найденных анкоров | 402 |
| Исходящие (внешние) ссылки домена | 23024 |
| Количество доменов, на которые ссылается сайт | 614 |
| Количество исходящих анкоров | 1589 |
| Внешние ссылки главной страницы ( 20 ) | |
| rarediseasesinternational.org/united-nations-human-rights-bo... | >> UN human rights body stresses need to address rare diseases within universal health coverage |
| intimateaudrey.org/ | read more... |
| ec.europa.eu/health/ern/consultations/2019_call_membership_e... | read more... |
| rare-diseases.eu/posters/ | read more... |
| euipfsummit.org/ | read more... |
| rareconnect.org/ | RareConnect.org online communities |
| rareconnect.org/en | <img> |
| rareconnect.org/en/community/cavernous-angioma | Join the cavernous angioma community. Share experiences and discover your support network! |
| rareconnect.org/en/contact | contact us |
| facebook.com/eurordis | <img> |
| twitter.com/eurordis | Tweets by @eurordis |
| youtube.com/channel/UCS501UpoBg4CpYsU9EqAwMQ | <img> |
| instagram.com/eurordis/ | <img> |
| hon.ch/HONcode/Conduct.html?HONConduct997484 | <img> |
| afm-france.org | <img> |
| ec.europa.eu/eahc/index.html | <img> |
| rarediseasesinternational.org/ | The international voice of people living with rare diseases |
| rareconnect.org/en | Bringing together patients, families and experts to share experiences in a moderated multi-language forum. |
| rarediseaseday.org/ | An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS i... |
| rare-diseases.eu/ | Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and ... |
| Внутренние ссылки главной страницы ( 72 ) | |
| /tv | EURORDIS TV |
| /contact | Contact Us |
| #fragment-4 | Noémie’s story of living with ALS |
| donation.eurordis.org/ | Donate |
| /about-eurordis | About EURORDIS |
| /who-we-are | Who we are |
| /what-we-do | What we do |
| /international | International activities |
| /membership | Membership |
| /library | Library |
| /financial-information-and-funding | Our funding |
| /about-rare-diseases | About Rare Diseases |
| /content/what-rare-disease | What is a rare disease? |
| eurordis.org/find-information-on-your-disease | Find information or help |
| /content/public-health-priority | A public health priority |
| /content/undiagnosed-rare-diseases | Undiagnosed rare diseases |
| /eu-rare-disease-policy | Rare Disease Policy |
| eurordis.org/rare-barometer-programme | Rare Barometer Programme |
| /about-orphan-drugs | Orphan Drugs & Treatments |
| eurordis.org/content/what-orphan-drug | What is an orphan drug? |
| /pharmacovigilance | Improve the safety of your medicines |
| /compassionate-use | Compassionate Use |
| /content/our-role | Role of EURORDIS |
| /content/patient-advocates-involvement | Patient advocates involvement |
| /content/access-orphan-drugs | Access to orphan drugs |
| /content/health-technology-assessment-0 | Health technology assessment |
| /ertc | EURORDIS Round Table of Companies (ERTC) |
| /orphan-drug-designations-marketing-authorisations | List of the latest marketing authorisations and orphan medicinal products designations |
| /living-with-a-rare-disease | Living with a Rare Disease |
| /services-and-trainings | Services & Trainings |
| /content/eurordis-open-academy | EURORDIS Open Academy |
| /specialised-social-services | Specialised Social Services |
| /content/rareconnect-0 | RareConnect |
| /content/rare-disease-help-lines | Help line services |
| /content/eurordis-community-advisory-board-cab-programme | EURORDIS Community Advisory Board (CAB) Programme |
| /get-involved | Get involved |
| /get-involved-individuals | Individuals |
| /get-involved-patient-groups | Patient groups |
| /get-involved-companies | Companies |
| eurordis.org/news-and-events | News & Events |
| /content/eurordis-events | EURORDIS Events |
| eurordis.org/content/members%E2%80%99-news-and-announcements | Members’ news and announcements |
| eurordis.org/content/rare-disease-events-europe | International rare disease events |
| /content/rare-diseases-arts | Rare diseases in the arts |
| /content/eurordis-webinars | EURORDIS webinars |
| /content/eurordis-press-releases | EURORDIS press releases |
| eurordis.org/news-and-events/#enews | eNews |
| /fr | FR |
| /de | DE |
| /es | ES |
| /it | IT |
| /pt-pt | PT |
| /ru | RU |
| eurordis.org/news/rare-disease-patient-advocates-sponsors-co... | >> Rare disease patient advocates & sponsors come together to co-produce clinical research |
| eurordis.org/news/concept-reality-true-patient-partnership-e... | >> From concept to reality: true patient partnership in ERNs |
| eurordis.org/news/carpe-diem-noemie-s-story-living-amyotroph... | >> Noémie, performer from the 2019 EURORDIS Black Pearl Awards, tells her story |
| download2.eurordis.org/pressreleases/PrevalencePaper_JointSt... | read more... |
| download2.eurordis.org/documents/pdf/Statement_23%20Sep%20UH... | read more... |
| eurordis.org/who-we-are | Who we are |
| eurordis.org/membership | Our members |
| eurordis.org/content/our-mission | Our mission statement |
| eurordis.org/tv | EURORDIS TV |
| eurordis.org/pt-pt/tv?vId=2421&cId=0&wId=31 | <img> |
| eurordis.org/content/eurordis-social-media | Social Media |
| eurordis.org/enews | Find out the latest news from the rare disease community! |
| /node/854 | Privacy Policy |
| eurordis.org/content/cookie-policy | Cookie Policy |
| /node/860 | Conditions of use |
| /node/825 | About this website |
| /node/15786 | Editorial Board |
| eurordis.org/ | The voice of rare disease patients in Europe |
| eurordis.org/voices | The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences i... |
Domain Name: EURORDIS.ORG
Registry Domain ID: D44921683-LROR
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IP адреса
Люксембург - 147.67.119.103
Люксембург - 147.67.119.3
Люксембург - 147.67.136.103
Люксембург - 147.67.136.3
Организация
European Commission
Интернет провайдер
Commission Europeenne
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