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Huntington's Disease Society of America
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Данные linkpad ( 9 Ноября 2016 ) | |
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Внешние ссылки главной страницы ( 115 ) | |
facebook.com/HDSofA | <img> |
twitter.com/HDSA | <img> |
youtube.com/channel/UCbjowsMQBkoj8TJbjsxPdaw/videos?view=0&s... | <img> |
instagram.com/hdsanational | <img> |
linkedin.com/company/huntington's-disease-society-of-america | <img> |
app.donorview.com/e18b | Donate |
enroll-hd.org/ | Enroll-HD |
youtube.com/watch?v=gAi6X5-Z2xo | 09/26/2018 RESEARCH WEBINAR: Update from Roche/Genentech on GENERATION-HD1 & RG6042 |
en.hdbuzz.net/ | HDBuzz |
fs22.formsite.com/hdsa/form67/index.html | Helping Young Cope |
fs22.formsite.com/hdsa/form69/index.html | Ethics |
fs22.formsite.com/hdsa/form68/index.html | 3 Behavioral Management |
fs22.formsite.com/hdsa/form70/index.html | 4 Legal Issues |
fs22.formsite.com/hdsa/ev9hmvalne/index.html | 5 Technology |
fs22.formsite.com/hdsa/mhd3jentlc/index.html | 6 Genetic Counseling |
fs22.formsite.com/hdsa/roacgtvlll/index.html | 7 Medical Marijuana |
app.donorview.com/n3kl | Tribute & Memorial Donations |
hdsa.careasy.org/HOME.html | Vehicle Donations |
cqrcengage.com/hdsa/?1 | HD ADVOCACY |
hdsa.donordrive.com/index.cfm?fuseaction=cms.home | HDSA Events |
hdsa.donordrive.com/index.cfm?fuseaction=donorDrive.eventGro... | Learn More |
platform.emergingmed.com/find-clinical-trials/hdsa | Enrollin a Trial |
app.donorview.com/Donation/DonationInfo?prm=tqITQp5N0w3BYK94... | Donateto HDSA |
en.hdbuzz.net/275 | 08/05/2019 HDBUZZ: Exciting New Huntingtin Lowering Tool Described |
fs22.formsite.com/hdsa/fqd87xq86k/index.html?fbclid=IwAR3uMr... | 07/30/2019 Now Accepting 2020 HDSA Centers of Excellence Letters of Interest |
youtube.com/watch?v=Mar8qTmfDpI | 07/23/2019 VIDEO: Here’s The Deal With Caregiving While Positive |
youtube.com/watch?v=8Kf4Ntb8Zv8 | 07/15/2019 VIDEO: 34th Annual HDSA Convention Recap |
kinzinger.house.gov/news/documentsingle.aspx?DocumentID=4020... | 05/15/2019 Huntington’s Disease Parity Act Is Reintroduced |
en.hdbuzz.net/273?fbclid=IwAR1uGgYFKsK-Ls6YTvuSNk4uKpcCZAX9m... | 05/07/2019 HDBUZZ: Fresh Updates from First Huntingtin Lowering Study Publication |
player.vimeo.com/video/329369831 | 04/18/2019 Postcard from Palm Springs: Highlights from the 2019 CHDI HD Therapeutics Conference |
youtube.com/watch?v=-rcEi3JYdxQ | 04/11/2019 HDSA Films Presents “The Hodgsons” Short Film |
en.hdbuzz.net/272 | 03/22/2019 HDBUZZ: An Updated Trial Design for Roche’s Huntingtin Lowering Trial: Roche announces an update to the GENERATION HD... |
en.hdbuzz.net/271 | 03/14/2019 HDBUZZ: Genetic Hiccups That Protect Against Huntington’s Disease |
en.hdbuzz.net/270 | 03/04/2019 HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 3 Recap |
en.hdbuzz.net/269 | 03/01/2019 HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 2 Recap |
today.com/video/sports-couple-turns-to-ivf-amid-concerns-of-... | 02/11/2019 Huntington’s Disease Featured On The Today Show |
en.hdbuzz.net/267 | 01/30/2019 HDBuzz: Huntington’s Disease Goes Viral as uniQure Inches Ahead in Gene Therapy Race |
tools.eurolandir.com/tools/Pressreleases/GetPressRelease/?ID... | 01/22/2019 uniQure Announces FDA Clearance of Investigational New Drug Application for AMT-130 in Huntington’s Disease |
en.hdbuzz.net/266?fbclid=IwAR2uB6Kx8t_LoYThKXb-KjcEHS9ZVpF3-... | 12/04/2018 HDBUZZ: Advances on many fronts in the battle against the protein that causes Huntington’s disease |
en.hdbuzz.net/264 | 10/03/2018 HDBuzz: Kids Get Huntington’s Disease Too |
en.hdbuzz.net/263/ | 09/18/2018 HDBuzz: The GENERATION-HD1 trial will test whether RG6042 – formerly Ionis-HTTRx – slows the progression of Huntingto... |
en.hdbuzz.net/260 | 07/10/2018 HDBUZZ: First Dolly, now Piglet; a new Huntington’s disease pig knock-in model confirmed |
youtube.com/watch?v=CosZnYtey7g | 06/27/2018 VIDEO: 33rd Annual HDSA Convention Recap |
vimeo.com/274605963 | 06/13/2018 VIDEO: HD Buzz at the 33rd Annual HDSA Convention |
vimeo.com/274610527 | 06/13/2018 VIDEO: 33rd Annual HDSA Convention Research Forum |
vimeo.com/274575984 | 06/13/2018 VIDEO: 33rd Annual HDSA Convention Opening Ceremony |
ir.ionispharma.com/node/23661/pdf | 04/24/2018 New Data from IONIS-HTT Rx Phase 1/2 Study Demonstrates Correlation Between Reduction of Disease-causing Protein and ... |
en.hdbuzz.net/257 | 04/19/2018 HDBuzz: Exciting Experiments in “Open Science” by Huntington’s Researchers |
en.hdbuzz.net/255 | 03/05/2018 HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 3 |
ir.ionispharma.com/node/23401/pdf | 03/01/2018 IONIS-HTT Rx : Top-Line Data Demonstrate Significant Reductions of Disease-Causing Mutant Huntingtin Protein in Peopl... |
en.hdbuzz.net/254 | 03/01/2018 HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 2 |
en.hdbuzz.net/253 | 02/28/2018 HDBUZZ- Huntington’s disease therapeutics conference 2018 – day 1 |
curehd.blogspot.com/2017/11/a-time-for-hope-hdsas-50th-anniv... | 11/14/2017 HDSA Honors Sportscaster Chris Berman & Raises More Than $250,000 |
en.hdbuzz.net/248 | 11/02/2017 HDBUZZ: Switch off the genome editor when you’re done |
en.hdbuzz.net/243 | 10/15/2017 Update confirms Huntington’s disease ‘gene silencing’ trial on track |
en.hdbuzz.net/246 | 09/25/2017 HDBUZZ: New roles for huntingtin: removing a healthy protein to understand its function |
en.hdbuzz.net/244 | 07/28/2017 HDBUZZ: A step forward for gene editing: CRISPR-Cas9 and HD |
ir.wavelifesciences.com/phoenix.zhtml?c=254233&p=irol-newsAr... | 07/17/2017 Wave Life Sciences Initiates Two Phase 1b/2a Clinical Trials: PRECISION-HD1 and PRECISION-HD2 in Patients with Huntin... |
en.hdbuzz.net/podcast/8 | 06/29/2017 Exclusive HDBuzz interview with Prof Lesley Jones (Cardiff University) and Prof Sarah Tabrizi (University College Lon... |
en.hdbuzz.net/242 | 06/08/2017 New study reveals a potential HD biomarker |
en.hdbuzz.net/241 | 05/08/2017 Has a “wonder drug” for dementia been discovered? (Spoiler alert: no.) |
en.hdbuzz.net/240 | 05/01/2017 Huntington’s Disease Therapeutics Conference 2017 – Day 3 |
en.hdbuzz.net/239 | 05/01/2017 Huntington’s Disease Therapeutics Conference 2017 – Day 2 |
en.hdbuzz.net/238 | 04/27/2017 Huntington’s Disease Therapeutics Conference 2017 – Day 1 |
en.hdbuzz.net/237 | 04/21/2017 Two recent studies show how a cellular border control system goes wrong in HD, opening new avenues for HD research. |
prnewswire.com/news-releases/pope-francis-to-meet-with-the-g... | 04/14/2017 Pope Francis To Meet With The Global Huntington’s Community To Shine A Light On And Lift Stigma Of Disease |
en.hdbuzz.net/236 | 04/05/2017 HDBuzz article – FDA approves a new drug for symptoms of Huntington’s disease |
ir.tevapharm.com/phoenix.zhtml?c=73925&p=irol-newsArticle&ID... | 04/03/2017 Teva Announces FDA Approval of AUSTEDO™ (deutetrabenazine) Tablets for the Treatment of Chorea Associated with Huntin... |
en.hdbuzz.net/235 | 03/29/2017 Sheep can help us to identify HD biomarkers and recognize metabolic changes that occur before symptoms develop. |
en.hdbuzz.net/234 | 02/24/2017 Weeding out the truth: can cannabis improve Huntington’s? |
en.hdbuzz.net/233 | 02/22/2017 Huntingtin grabs a hammer: DNA repair in HD |
en.hdbuzz.net/232 | 02/10/2017 The benefits of migration, highlighted in Huntington’s disease |
en.hdbuzz.net/231 | 01/12/2017 HDBuzz: Treasure your exceptions – using outliers to understand Huntington’s disease onset and progression |
en.hdbuzz.net/229 | 12/19/2016 Pfizer Amaryllis trial ends : no improvement in Huntington’s disease symptoms |
en.hdbuzz.net/228 | 11/01/2016 Important advances in next generation genome editing tools for Huntington’s Disease |
en.hdbuzz.net/227 | 10/03/2016 HDBuzz helps untangle the results of the PRIDE-HD trial of pridopidine |
en.hdbuzz.net/226 | 09/23/2016 EuroBuzz 2016: The Euro-HD Network Meeting in The Hague |
en.hdbuzz.net/225 | 08/30/2016 New technology enables researchers to find ultra-rare mutations in the HD gene, distinct from the one causing HD |
en.hdbuzz.net/224 | 08/17/2016 Deutetrabenazine for Huntington’s disease: a positive trial but the FDA says no? Not exactly… |
en.hdbuzz.net/223 | 08/02/2016 A support system gone wrong – glial cells contribute to HD symptoms |
en.hdbuzz.net/222 | 07/05/2016 Slightly long CAG repeats are more common than we thought |
en.hdbuzz.net/221 | 06/29/2016 Early exposure to the HD protein may cause life-long symptoms |
en.hdbuzz.net/220 | 06/20/2016 Electron beam snaps best images yet of Huntington’s disease protein |
en.hdbuzz.net/218 | 06/07/2016 Huntingtin takes a trip: harmful proteins pass between brain cells |
en.hdbuzz.net/217 | 05/03/2016 Important drug targets yielded by new genetic study of HD |
en.hdbuzz.net/216 | 04/18/2016 Thinking clearly about the earliest symptoms of HD and which brain regions control them |
en.hdbuzz.net/215 | 03/10/2016 How NOT to write a news article about a clinical trial |
en.hdbuzz.net/214 | 02/29/2016 HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 3 |
en.hdbuzz.net/213 | 02/26/2016 HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 2 |
en.hdbuzz.net/212 | 02/24/2016 HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 1 |
en.hdbuzz.net/211 | 02/01/2016 Harnessing the power of viruses to treat Huntington’s disease |
en.hdbuzz.net/210 | 01/25/2016 Through a Broader Lens: Looking at Non-Motor Symptoms in HD |
en.hdbuzz.net/209 | 12/18/2015 Looking Past the Spin: Results from a Clinical Trial of Cysteamine |
en.hdbuzz.net/208 | 12/15/2015 An existing drug could give a boost to HD brain cells – but it may need more testing before it’s back in the clinic |
en.hdbuzz.net/207 | 12/02/2015 Through the eyes of a friend: changes in mood and behavior in early HD |
en.hdbuzz.net/206 | 11/25/2015 A multiple sclerosis drug that works for Huntington’s disease: the real deal or too good to be true? |
en.hdbuzz.net/204 | 10/20/2015 HDBuzz- Liftoff: First humans treated with gene silencing drugs for HD! |
en.hdbuzz.net/203 | 10/09/2015 HDBuzz primer: Clinical trial designs and phases |
en.hdbuzz.net/202 | 09/17/2015 HDBUZZ- A Few Bad Seeds: Using Brain Fluid to Grow Clumps in Brain Cells |
en.hdbuzz.net/199 | 07/29/2015 Would ewe believe it? GM1, sheep and Huntington’s disease |
energycommerce.house.gov/press-release/251-patient-organizat... | 06/19/2015 HDSA Supports 21st Century Cures Act |
nih.gov/news/health/jun2015/ninds-11.htm | 06/16/2015 NIH Names Walter J. Koroshetz, M.D. Director of the National Institute of Neurological Disorders and Stroke |
en.hdbuzz.net/198 | 06/02/2015 HDBUZZ: Switching it up: variety in the HD gene affects symptom onset |
en.hdbuzz.net/podcast/4 | 05/12/2015 2015 Huntington’s Disease Therapeutics Conference and taking part in trials |
sciencedaily.com/releases/2015/05/150505082827.htm | 05/07/2015 Gene variant determines early or late onset of Huntington’s disease |
en.hdbuzz.net/171 | 01/28/2015 HDBuzz: 2CARE Study of Coenzyme Q for Huntington’s Disease Ends |
investor.auspexpharma.com/releasedetail.cfm?ReleaseID=866632 | 01/28/2015 Auspex Pharmaceuticals Completes Enrollment in Phase 3 Clinical Trial of SD-809 in Chorea Associated With Huntington’... |
huntingtonsdiseasefl.org/ | 2/23/2020 5AM Huntington’s Disease Triathlon 12451 SW 184th Street , Miami, FL 33177 |
app.donorview.com/xKzo3 | 2/29/2020 5:30PM 2020 Madison Re-Prom One John Nolen Drive , Madison, WI 53703 |
visitor.r20.constantcontact.com/manage/optin?v=001AGxZDV4w6I... | Subscribe Subscribe to theHDSA e-newsletter today! |
charitynavigator.org/index.cfm?bay=search.summary&orgid=1307... | <img> |
give.org/charity-reviews/national/health/huntingtons-disease... | <img> |
nationalhealthcouncil.org/ | <img> |
greatnonprofits.org/org/huntingtons-disease-society-of-ameri... | <img> |
visitor.r20.constantcontact.com/manage/optin?v=001AGxZDV4w6I... | Newsletter signup |
Внутренние ссылки главной страницы ( 238 ) | |
# | - |
hdsa.org | <img> |
/about-hdsa/about/ | About HDSA |
/news | News |
/events | Events |
/about-hdsa/chapters-affiliates/ | Chapters & Affiliates |
/find-help/clinical-care-services/hdsa-centers-of-excellence... | HDSA Centers of Excellence |
nya.hdsa.org/ | HDSA National Youth Alliance |
hdsa.org/shop/publications/ | Publications |
hdsa.org/what-is-hd/history-and-genetics-of-huntingtons-dise... | History and Genetics of Huntington’s Disease |
hdsa.org/what-is-hd/overview-of-huntingtons-disease/ | What is HD? |
hdsa.org/what-is-hd/history-and-genetics-of-huntingtons-dise... | Who Is At-Risk? |
hdsa.org/what-is-hd/history-and-genetics-of-huntingtons-dise... | Genetic Testing & Family Planning |
hdsa.org/what-is-hd/history-and-genetics-of-huntingtons-dise... | Juvenile Onset HD |
hdsa.org/what-is-hd/history-and-genetics-of-huntingtons-dise... | History of HD |
hdsa.org/what-is-hd/huntingtons-disease-symptoms/ | Huntington’s Disease Symptoms |
hdsa.org/what-is-hd/age-of-onset/ | The Age of Onset |
hdsa.org/what-is-hd/motor-physical-symptoms/ | Motor / Physical Symptoms |
hdsa.org/what-is-hd/cognitive-symptoms/ | Cognitive Symptoms |
hdsa.org/what-is-hd/behavioral-psychiatric-symptoms/ | Behavioral / Psychological Symptoms |
hdsa.org/what-is-hd/huntingtons-disease-stages/ | Late Stage |
hdsa.org/about-hdsa/locate-resources/ | Find Help |
hdsa.org/find-help/clinical-care-services/ | Clinical Care & Services |
/find-help/clinical-care-services/ | Suicide Prevention |
hdsa.org/find-help/healthcare-and-future-planning/ | Healthcare & Future Planning |
hdsa.org/find-help/healthcare-and-future-planning/genetic-te... | Genetic Testing & Your Rights |
hdsa.org/find-help/healthcare-and-future-planning/disability... | Disability Benefits and HD |
hdsa.org/find-help/healthcare-and-future-planning/long-term-... | Long-Term HD Care |
hdsa.org/find-help/living-well-with-hd/ | Living Well With HD |
hdsa.org/find-help/living-well-with-hd/nutrition/ | Nutrition |
hdsa.org/find-help/living-well-with-hd/excercise-physical-th... | Exercise / Physical Therapy |
hdsa.org/find-help/living-well-with-hd/swallow-dysfunction-a... | Swallow Dysfunction & Choking |
hdsa.org/find-help/living-well-with-hd/speech/ | Speech |
hdsa.org/find-help/living-well-with-hd/law-enforcement-train... | Law Enforcement Training Guide |
hdsa.org/find-help/community-social-support/ | Community & Social Support |
hdsa.org/find-help/community-social-support/youth-programs/ | Youth Services |
hdsa.org/find-help/community-social-support/caregiver-servic... | Caregiver Services & Resources |
hdsa.org/find-help/community-social-support/hdsa-telehealth/ | HDSA Telehealth |
/find-help/community-social-support/ | HDSA Support Groups |
hdsa.org/find-help/community-social-support/social-workers/ | HDSA Social Workers |
hdsa.org/find-help/community-social-support/hdsa-resource-li... | HDSA Resource Library |
hdsa.org/hd-research/participate-in-hd-research/ | Participate in HD Research |
/hd-research/hd-trial-finder/ | HD Trialfinder |
/hd-research/online-surveys/ | Participate in Online Surveys |
/hd-research/learn-about-hd-research/ | Learn About HD Research |
hdsa.org/blog/ | 04/04/2019 BLOG: This Week in HD Research |
hdsa.org/hd-research/hd-research-webinar-series/ | HDSA Research Webinars |
hdsa.org/hd-research/research-investor-reports/ | Annual HDSA Research Reports |
hdsa.org/hd-research/therapies-in-pipeline/ | HD Research in the Pipeline |
hdsa.org/hd-research/research-we-fund/ | HDSA Research Funding Programs |
hdsa.org/hd-research/hd-human-biology-project/ | HD Human Biology Project |
hdsa.org/hd-research/the-donald-a-king-summer-research-fello... | Donald A. King Fellowship |
hdsa.org/bermantopperfellowship/ | Berman-Topper Fellowship |
hdsa.org/hd-research/researcher-spotlight/ | Spotlight on HD Researchers |
hdsa.org/hd-research/hd-cope/ | HD Cope |
/about-hdsa/scientific-board/ | Scientific Advisory Board |
hdsa.org/healthcare-professionals-resources/hd-101-cme-serie... | HD 101: CME SERIES |
hdsa.org/hd101mod1/ | Series Intro |
hdsa.org/hd101mod2/ | Genetic Factors |
hdsa.org/hd101mod3/ | Prodrome of HD |
hdsa.org/hd101mod4/ | HD Cognitive Features |
hdsa.org/hd101mod5/ | Psychiatric Syndromes |
hdsa.org/hd101mod6/ | Motor Dysfunction |
hdsa.org/hd101mod7/ | Juvenile HD |
hdsa.org/hd101mod8/ | Team Based Care for HD |
hdsa.org/hd101mod9/ | Experimental Therapeutics |
hdsa.org/hd101mod10/ | Disability and Advocacy |
hdsa.org/healthcare-professionals-resources/social-worker-co... | SOCIAL WORKER CONTINUING EDUCATION |
hdsa.org/healthcare-professionals-resources/pt-continuing-ed... | PT CONTINUING EDUCATION |
hdsa.org/ptmodule1/ | 1 HD Overview |
hdsa.org/healthcare-professionals-resources/pt-continuing-ed... | 2 PT Evaluation |
hdsa.org/healthcare-professionals-resources/pt-continuing-ed... | 3 PT in Early-Mid Stages |
hdsa.org/healthcare-professionals-resources/pt-continuing-ed... | 4 PT in Late Stage |
hdsa.org/healthcare-professionals-resources/pt-continuing-ed... | 5 Reimbursement Issues |
hdsa.org/healthcare-professionals-resources/resources-for-so... | RESOURCES FOR SOCIAL WORKERS |
hdsa.org/get-involved/donation-opportunities/ | DONATION OPPORTUNITIES |
hdsa.org/get-involved/stock-appreciated-asset-real-estate-do... | Stocks / Assets / Real Estate |
hdsa.org/get-involved/planned-giving/ | Planned Giving |
hdsa.org/get-involved/matching-gifts-program/ | Matching Gifts Program |
hdsa.org/get-involved/workplace-giving/ | Workplace Giving |
hdsa.org/get-involved/hdsa-tree-of-help-hope/ | Learn More |
hdsa.org/get-involved/hdsa-family-funds/ | HDSA Family Funds |
hdsa.org/volunteer-opportunities/ | Volunteer Registration |
hdsa.org/get-involved/nyc-marathon-team/ | HDSA New York City Marathon |
hdsa.org/get-involved/shop-hdsa/ | HDSA Shop |
hdsa.org/shop/hdsagear/ | HDSA Gear |
hdsa.org/shop/flowers-for-hdsa/ | Flowers for HDSA |
hdsa.org/shop/publications/ | Publications |
hdsa.org/shop/hdsa-partners/ | Shop HDSA Partners |
hdsa.org/wp-content/uploads/2019/11/HDSA-The-Marker_2019.pdf | 11/19/2019 HDSA Publishes The Marker – 2019 Research Report |
hdsa.org/about-hdsa/annual-convention/2019-2/ | Learn More |
hdsa.org/hd-research/enroll-in-a-clinical-trial/ | Learn More |
/find-help/community-social-support/hdsa-telehealth/ | Learn More |
hdsa.org/news/hdsa-earns-fourth-consecutive-4-star-rating-fr... | 12/23/2019 HDSA Earns Fourth Consecutive 4-Star Rating From Charity Navigator |
hdsa.org/news/hdsa-awards-inaugural-clinical-research-pilot-... | 12/23/2019 HDSA Awards Inaugural Clinical Research Pilot Grants to Four Centers of Excellence |
hdsa.org/news/hdsa-listed-in-top-10-volunteer-opportunities-... | 12/05/2019 HDSA Listed As Top 10 Volunteer Opportunities In New York City By Great Nonprofits |
hdsa.org/news/hdsa-welcomes-three-trustees-to-national-board... | 11/27/2019 HDSA Welcomes Three Trustees to National Board |
hdsa.org/news/hdsas-new-york-city-marathon-team-raises-more-... | 11/06/2019 HDSA’s New York City Marathon Team Raises More Than $133,000 To Support The Fight Against HD |
hdsa.org/news/hdsa-awards-five-2019-hd-human-biology-project... | 10/15/2019 HDSA Awards Five 2019 HD Human Biology Project Fellowships |
hdsa.org/news/community-statement-from-roche-genentech/ | 10/15/2019 Community Statement from Roche / Genentech |
hdsa.org/news/view-5th-annual-freeze-hd-photos/ | 10/01/2019 View 5th Annual Freeze HD Red Carpet and Event Photos |
hdsa.org/news/5th-annual-freeze-hd-raises-more-than-420000-t... | 10/01/2019 5th Annual Freeze HD Raises More Than $420,000 To Support HDSA |
hdsa.org/wp-content/uploads/2019/12/HDSA_2018-Annual-Report.... | 09/11/2019 2018 HDSA Annual Report |
hdsa.org/news/hdsa-sets-new-attendance-record-at-the-34th-an... | 07/01/2019 HDSA Sets New Attendance Record at the 34th Annual HDSA Convention in Boston |
hdsa.org/news/community-statement-from-uniqure/ | 06/28/2019 Community Statement from uniQure |
hdsa.org/news/hdsa-chdi-foundation-launch-hd-legacy-to-promo... | 06/20/2019 HDSA & CHDI Foundation Launch HD Legacy to Promote Brain Donation for HD Research |
hdsa.org/news/hdsa-adds-allison-bartlett-as-manager-of-disab... | 06/11/2019 HDSA Adds Allison Bartlett as Manager of Disability Programs |
hdsa.org/news/hdsa-awards-2019-berman-topper-family-hd-caree... | 05/31/2019 HDSA Awards 2019 Berman-Topper Family HD Career Development Fellowships |
hdsa.org/news/hdsa-announces-winners-of-2019-donald-a-king-s... | 04/16/2019 HDSA Announces Winners of 2019 Donald A. King Summer Research Fellowship |
hdsa.org/wp-content/uploads/2019/04/Wave-letter-to-HD-commun... | 04/10/2019 Update on PRECISION-HD program |
hdsa.org/wp-content/uploads/2019/03/Roche-Genentech-global-H... | 03/21/2019 COMMUNITY STATEMENT FROM ROCHE/GENENTECH: Amendment to the RG6042 Phase III GENERATION HD1 study design |
hdsa.org/news/hdsa-expands-centers-of-excellence-program-to-... | 02/06/2019 HDSA Expands Centers of Excellence Program to Forty-Seven |
hdsa.org/wp-content/uploads/2019/01/Roche-global-HD-communit... | 01/28/2019 First Patients Enrolled in HD Natural History & GENERATION HD1 Clinical Studies |
hdsa.org/wp-content/uploads/2019/01/HDSA_2018_YearInReview_S... | 01/24/2019 HDSA Publishes 2018 Year In Review Magazine |
hdsa.org/wp-content/uploads/2019/01/2019-Youth-Social-Worker... | 01/16/2019 HDSA Launches Youth Social Worker Program |
hdsa.org/news/breaking-news-roche-genentech-announces-us-loc... | 12/19/2018 BREAKING NEWS: Roche/Genentech Announces US Locations of GENERATION-HD1 Drug Study |
hdsa.org/wp-content/uploads/2018/12/HDSA-2018-Research-Repor... | 12/11/2018 HDSA’s 2018 Research Report Now Available |
hdsa.org/wp-content/uploads/2018/12/2018-BOT-Press-Release-F... | 12/10/2018 EJ Garner Appointed as Chair of HDSA’s National Board of Trustees |
hdsa.org/news/genentech-roche-announces-us-canadian-location... | 11/10/2018 Genentech/Roche Announces US & Canadian Locations of Observational Natural History Study |
hdsa.org/wp-content/uploads/2018/10/2018-Human-Bio-Project-P... | 10/23/2018 HDSA Awards Five HD Human Biology Project Fellowships for 2018 |
hdsa.org/wp-content/uploads/2018/10/FINAL-101518_FAQ-about-U... | 10/17/2018 FAQs: Upcoming Genentech/Roche Studies |
hdsa.org/wp-content/uploads/2018/09/Roche-global-HD-communit... | 09/16/2018 Update on RG6042 (formerly known as IONIS-HTTRx) Huntington’s disease global development programme: Two clinical stud... |
hdsa.org/news/roches-phase-3-trial-for-rg6042-formerly-ionis... | 09/16/2018 Roche’s Phase 3 Trial for RG6042 (formerly IONIS HTT-Rx) has been announced: GENERATION-HD1 |
hdsa.org/wp-content/uploads/2018/08/Roche-PRIME-PR.pdf | 08/03/2018 Roche Media Release Regarding PRIME Designation Granted by European Medicines Agency for RG6042 (formerly IONIS-HTT R... |
hdsa.org/wp-content/uploads/2018/08/IONIS-HTT-Rx-RG6042-Gran... | 08/02/2018 IONIS-HTT Rx (RG6042) Granted PRIME Designation by the European Medicines Agency for the Treatment of People with Hun... |
hdsa.org/news/now-accepting-2019-hdsa-centers-of-excellence-... | 08/01/2018 Now Accepting 2019 HDSA Centers of Excellence Letters of Interest |
hdsa.org/wp-content/uploads/2018/06/2018-Conventon-Post-Even... | 06/13/2018 33rd Annual HDSA Convention Recap |
hdsa.org/wp-content/uploads/2018/06/Roche-global-HD-communit... | 06/07/2018 Getting to know Roche & Genentech, RG6042 (formerly known as IONIS-HTTRx ) |
hdsa.org/wp-content/uploads/2018/05/2018-BermanTopper-Winner... | 05/15/2018 HDSA Awards Berman-Topper Family HD Career Development Fellowship |
hdsa.org/wp-content/uploads/2018/04/April-24-Ionis-announcem... | 04/27/2018 FAQs Regarding the Latest Huntingtin-Lowering Update from Ionis & Roche |
hdsa.org/wp-content/uploads/2018/04/2018-DKF-Winners-PR-FINA... | 04/24/2018 HDSA Announces Winners of 2018 Donald A. King Summer Research Fellowship |
hdsa.org/wp-content/uploads/2018/04/Roche-AAN-HD-Community-S... | 04/20/2018 Roche Community Statement Regarding RG6042 (formerly known as IONIS-HTTRx ) |
hdsa.org/hd-research/research-video-postcards/ | 03/29/2018 VIDEO: Postcard from CHDI Meetings in Palm Springs & Malta |
hdsa.org/wp-content/uploads/2018/03/031218_Crowdsourcing-cha... | 03/12/2018 HDSA Partners with the ALS Association & Teva Pharmaceuticals to Identify Novel Therapeutic Targets for CNS Disorders |
hdsa.org/news/hdsa-earns-second-consecutive-4-star-rating-fr... | 03/05/2018 HDSA Earns Second Consecutive 4-Star Rating from Charity Navigator |
hdsa.org/wp-content/uploads/2018/03/Ionis-Roche-CHDI-HD-Comm... | 03/01/2018 IONIS-HTT Rx Community Statement |
hdsa.org/wp-content/uploads/2018/02/2018-COE-PR_FINAL.pdf | 02/13/2018 HDSA Announces Forty-Three Centers of Excellence |
hdsa.org/wp-content/uploads/2018/02/HDSA-Assistance-Programs... | 02/02/2018 CEO Memo: Chorea Medication Co-Pay Assistance Programs Information |
hdsa.org/news/faq-ionis-huntingtin-lowering-trial/ | 12/12/2017 FAQs: Ionis Huntingtin-Lowering Trial |
hdsa.org/news/statement-by-louise-vetter-president-ceo-of-th... | 12/11/2017 Statement by Louise Vetter, President & CEO of the Huntington’s Disease Society of America regarding Ionis-HTTRx Ann... |
hdsa.org/news/breaking-news-update-on-the-status-of-the-ioni... | 12/11/2017 BREAKING NEWS: Update on the Status of the IONIS-HTTRx Program and its Future |
hdsa.org/news/huntingtons-disease-society-of-america-announc... | 11/20/2017 Huntington’s Disease Society of America Announces the Launch of a Three-Part Online Accredited Continuing Education C... |
hdsa.org/news/hdsa-pays-tribute-to-founder-marjorie-guthrie-... | 11/14/2017 HDSA Pays Tribute to Founder Marjorie Guthrie & 50 Years of the Guthrie Family Legacy |
hdsa.org/news/huntingtons-disease-society-of-america-awards-... | 10/12/2017 Huntington’s Disease Society of America Awards Four HD Human Biology Project Fellowships for 2017 |
hdsa.org/news/global-huntingtons-disease-patient-advocacy-or... | 09/19/2017 Global Huntington’s Disease Patient Advocacy Organizations Unite to Form Huntington’s Disease Coalition for Patient ... |
hdsa.org/news/huntingtons-disease-society-of-americas-50th-a... | 09/18/2017 Huntington’s Disease Society of America’s 50th Anniversary to Celebrate the Life & Legacy of Its Founder Marjorie Gut... |
hdsa.org/news/healthwell-foundation-opens-huntingtons-diseas... | 08/01/2017 HealthWell Foundation Opens Huntington’s Disease Fund to Assist Medicare Patients |
hdsa.org/wp-content/uploads/2017/06/2017-HDSA-Community-Stat... | 06/22/2017 Exciting News: IONIS provides update on Huntingtin lowering trial |
hdsa.org/news/huntingtons-disease-society-of-america-launche... | 06/21/2017 HUNTINGTON’S DISEASE SOCIETY OF AMERICA LAUNCHES FIRST-OF-ITS-KIND FREE TELEHEALTH COUNSELING FOR HD FAMILIES |
hdsa.org/news/huntingtons-disease-society-of-america-awards-... | 05/30/2017 HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS BERMAN-TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIPS RESEARCHERS FRO... |
hdsa.org/news/huntingtons-disease-parity-act-reintroduced-to... | 05/24/2017 Huntington’s Disease Parity Act Reintroduced to Waive Two-Year Waiting Period for Medicare Coverage for those with Hu... |
hdsa.org/news/huntingtons-disease-society-of-america-raises-... | 05/16/2017 Huntington’s Disease Society of America Raises Nearly $40,000 at Guthrie Sessions Live in New York City |
hdsa.org/news/huntingtons-disease-society-of-america-announc... | 05/15/2017 Huntington’s Disease Society of America Announces Winners of 2017 Donald A. King Summer Research Fellowship |
hdsa.org/news/huntingtons-disease-society-of-america-premier... | 05/15/2017 Huntington’s Disease Society of America Premieres Her Mother’s Daughter Documentary During HD Awareness Month |
hdsa.org/news/huntingtons-disease-society-of-america-collabo... | 05/02/2017 Huntington’s Disease Society of America Collaborates with HealthWell Foundation to Launch Movement Disorders Fund to ... |
hdsa.org/news/2017-national-awards-nominations/ | 03/28/2017 2017 National Awards Nominations |
hdsa.org/news/save-the-date-for-the-largest-global-gathering... | 03/13/2017 Save the Date- For the largest global gathering of the HD community! |
hdsa.org/news/huntingtons-disease-society-of-america-announc... | 02/28/2017 Huntington’s Disease Society of America Announces Premiere for Juvenile Huntington’s Disease Documentary |
hdsa.org/news/huntingtons-disease-society-of-america-announc... | 02/08/2017 Huntington’s Disease Society of America Announces Forty-One 2017 HDSA Centers of Excellence |
hdsa.org/news/huntingtons-disease-society-of-america-unveils... | 01/19/2017 Huntington’s Disease Society of America Unveils HDNavigator Mobile App |
hdsa.org/hd-research/research-investor-reports/ | 12/23/2015 HDSA Releases 2015 Research Investor’s Report |
hdsa.org/news/huntingtons-disease-society-of-america-to-prov... | 12/02/2016 Huntington’s Disease Society of America to Provide 1,000 Free Liftware Level Devices to People Living with Huntingt... |
hdsa.org/news/hdsa-earns-top-rating-from-charitywatch/ | 11/22/2016 HDSA Earns Top-Rating from CharityWatch |
hdsa.org/news/huntingtons-disease-society-of-america-awards-... | 11/15/2016 Huntington’s Disease Society of America AWARDS $930,000 to nine new HD Human Biology fellows |
hdsa.org/wp-content/uploads/2016/09/PRIDE-HD-PR.pdf | 09/19/2016 Exciting Press Release from Teva Regarding Pridopidine: Possibly the first disease modifying drug for HD |
hdsa.org/news/hd-support-care-network-and-huntingtons-diseas... | 08/22/2016 HD Support & Care Network and Huntington’s Disease Society of America Partner for Stronger HD Support Groups in Calif... |
hdsa.org/news/huntingtons-disease-society-of-americas-2017-h... | 07/18/2016 Huntington’s Disease Society of America’s 2017 HDSA Center of Excellence Program Now Accepting Letters of Interest |
hdsa.org/news/huntingtons-disease-community-scores-major-vic... | 07/08/2016 Huntington’s Disease Community Scores Major Victory with Social Security Criteria |
hdsa.org/news/wave-life-sciences-receives-orphan-drug-design... | 06/21/2016 WAVE Life Sciences Receives Orphan Drug Designation from FDA for its Lead Candidate Designed to Treat Huntington’s Di... |
hdsa.org/about-hdsa/annual-convention/2016-convention/ | 06/14/2016 Select Videos From HDSA’s 31st Annual Convention Now Available |
hdsa.org/news/huntingtons-disease-society-of-america-hosts-t... | 06/10/2016 Huntington’s Disease Society of America Hosts the 2nd Largest Convention in 31 Years |
hdsa.org/news/watch-us-live-from-the-31st-annual-hdsa-conven... | 06/03/2016 Watch us Live from the 31st Annual HDSA Convention |
hdsa.org/news/hdsa-national-board-of-trustees-is-asking-for-... | 06/01/2016 HDSA National Board of Trustees is asking for your help developing a new five-year plan that will chart the organizat... |
hdsa.org/news/postcard-from-palm-springs/ | 05/17/2016 Postcard from Palm Springs |
hdsa.org/news/huntingtons-disease-society-of-america-awards-... | 05/10/2016 Huntington’s Disease Society of America awards first-ever Berman-topper Family HD Career Development Fellowship |
hdsa.org/news/huntingtons-disease-society-of-america-launche... | 05/02/2016 Huntington’s Disease Society of America Launches #LetsTalkAboutHD Campaign During Huntington’s Disease Awareness Mont... |
hdsa.org/news/huntingtons-disease-society-of-america-release... | 04/28/2016 Huntington’s Disease Society of America Releases Updated “Genetic Testing Protocol for Huntington’s Disease” |
hdsa.org/news/huntingtons-disease-society-of-america-announc... | 04/18/2016 Huntington’s Disease Society of America Announces Winners of 2016 Donald A. King Summer Research Fellowship |
hdsa.org/news/2016-hdsa-national-awards-nominations/ | 03/28/2016 2016 HDSA NATIONAL AWARDS NOMINATIONS |
hdsa.org/news/huntingtons-disease-society-of-america-partner... | 02/05/2016 Huntington’s Disease Society of America Partners with WeHaveAFace.org to Increase Access to The Huntington’s Disease ... |
hdsa.org/news/huntingtons-disease-society-of-america-announc... | 02/01/2016 Huntington’s Disease Society of America Announces Thirty-Nine 2016 HDSA Centers of Excellence |
hdsa.org/wp-content/uploads/2016/01/HDSA-2015-Year-in-Review... | 01/22/2016 HDSA Releases 2015 Year in Review |
hdsa.org/wp-content/uploads/2015/12/Raptor-RPTP-Huntingtons-... | 12/10/2015 Raptor Plans to Advance RP103 in a Registration Study |
hdsa.org/news/auto-draft/ | 12/07/2015 New HD Career Development Fellowship Announced by Huntington’s Disease Society of America |
hdsa.org/news/huntingtons-disease-society-of-america-adds-ca... | 12/02/2015 Huntington’s Disease Society of America Adds Call Center Component to HD TrialFinder |
hdsa.org/news/huntingtons-disease-society-of-america-receive... | 12/01/2015 Huntington’s Disease Society of America Receives 4-Star Rating From Charity Navigator |
hdsa.org/news/huntingtons-disease-society-of-america-now-acc... | 11/25/2015 Huntington’s Disease Society of America Now Accepting Applications for the 2016 Donald A. King Summer Research Fello... |
hdsa.org/news/huntingtons-disease-society-of-americas-new-yo... | 11/03/2015 Huntington’s Disease Society of America’s New York City Marathon Team Raises More Than $125,000 |
hdsa.org/news/fourth-annual-strike-out-hd-bowling-event-host... | 11/02/2015 Fourth Annual Strike Out HD Bowling Event Hosted by New York Giant Geoff Schwartz Raises Nearly $50,000 |
hdsa.org/news/huntingtons-disease-society-of-america-announc... | 10/05/2015 Huntington’s Disease Society of America Announces 2015 HD Human Biology Project Grant Recipients |
hdsa.org/news/fda-opens-60-day-open-comment-period/ | 09/23/2015 FDA Opens 60 Day Open Comment Period |
hdsa.org/news/hundreds-of-hd-families-join-fda-hearing-to-sh... | 09/22/2015 Hundreds of HD Families Join FDA Hearing to Shape Drug Development for Huntington’s Disease |
hdsa.org/news/cnn-new-day-hosts-alisyn-camerota-chris-cuomo-... | 09/11/2015 CNN “NEW DAY” Hosts Alisyn Camerota & Chris Cuomo raise $10,000 for the Huntington’s Disease Society of America |
hdsa.org/news/tell-us-your-thoughts/ | 08/31/2015 Deadline To Tell Us Your Thoughts Has Been Extended! |
hdsa.org/news/6984/ | 08/17/2015 HDSA Announces 2016 Call for Letters of Interest for Center of Excellence Program |
hdsa.org/news/patient-focused-drug-discovery-meeting-at-the-... | 08/05/2015 Patient-Focused Drug Discovery Meeting at the FDA on Huntington’s Disease |
hdsa.org/news/scientists-identify-genetic-factors-that-alter... | 07/30/2015 Scientists identify genetic factors that alter the clinical onset of HD in landmark study |
hdsa.org/wp-content/uploads/2015/07/PR_07-21-15_Isis-Pharmac... | 07/21/2015 ISIS Pharmaceuticals Initiates Clinical Study of Huntingtin Lowering Drug in HD Patients |
hdsa.org/news/30th-annual-convention-is-a-huge-success-for-t... | 07/02/2015 30th Annual Convention is a Huge Success for the Huntington’s Disease Society of America |
hdsa.org/news/calling-all-hd-families-our-time-to-be-heard-i... | 06/22/2015 Calling all HD families: Our time to be heard is now! |
hdsa.org/news/huntingtons-disease-society-of-america-receive... | 06/19/2015 Huntington’s Disease Society Of America Receives CHARITYWATCH Top-Rated Status |
hdsa.org/news/life-in-hd-earns-rave-reviews-for-the-huntingt... | 06/02/2015 Life in HD Earns Rave Reviews for the Huntington’s Disease Society of America |
hdsa.org/hd-research/research-news-reports/2015-postcard-fro... | 05/26/2015 2015 Postcard from Palm Springs |
en.hdbuzz.net/196 | 05/13/2015 HDBuzz article – A faulty filter? Blood vessel changes in Huntington’s disease |
hdsa.org/news/life-in-hd-a-conversation-with-lisa-genova-tic... | 05/01/2015 Life in HD: A Conversation with Lisa Genova Tickets Now on Sale |
hdsa.org/news/huntingtons-disease-society-of-america-announc... | 04/22/2015 Huntington’s Disease Society of America Announces Winners of 2015 Donald A. King Summer Research Fellowship |
hdsa.org/news/lighting-the-way-a-new-biomarker-for-huntingto... | 04/21/2015 Lighting the way: A new biomarker for Huntington’s disease |
hdsa.org/news/huntingtons-disease-society-of-america-launche... | 04/07/2015 Huntington’s Disease Society of America Launches HD TrialFinder First-Of-Its-Kind Clinical Trial Matching Service For... |
hdsa.org/news/new-york-times-bestselling-author-lisa-genova-... | 04/07/2015 New York Times Bestselling Author Lisa Genova to release Inside the O’Briens |
hdsa.org/wp-content/uploads/2015/01/Law-Enforcement-ToolkitI... | 01/29/2015 Law Enforcement Toolkit II Webinar Now Available |
hdsa.org/news/huntingtons-disease-society-of-america-announc... | 01/29/2015 Huntington’s Disease Society of America Announces First-Ever HD Human Biology Project Awards |
hdsa.org/news/huntingtons-disease-society-of-america-endorse... | 01/29/2015 Huntington’s Disease Society of America Endorses Enroll-HD |
hdsa.org/news/huntingtons-disease-society-of-america-announc... | 01/29/2015 Huntington’s Disease Society of America Announces Winners of the 2014 Donald A. King Summer Research Fellowship |
hdsa.org/news/pride-hd-study-enrolling-patients-globally-to-... | 01/29/2015 Pride-HD Study Enrolling Patients Globally to Further Evaluate Pridopidine for the Symptomatic Treatment of Huntingto... |
hdsa.org/news/hdsa-appoints-director-of-marketing-communicat... | 01/29/2015 HDSA appoints Director of Marketing & Communications |
hdsa.org/news/world-leader-in-movement-disorders-professor-i... | 01/29/2015 World leader in movement disorders Professor Ira Shoulson joins Prana Board |
hdsa.org/news/pitt-study-demonstrates-how-huntingtons-diseas... | 01/29/2015 Pitt Study Demonstrates How Huntington’s Disease Protein Disrupts a Novel Cellular Pathway to Cause Death of Neurons |
hdsa.org/news/huntingtons-disease-society-of-america-launche... | 01/28/2015 Huntington’s Disease Society of America Launches First “HD News” App |
hdsa.org/wp-content/uploads/2015/01/Announcement-of-2CARE-Ea... | 01/28/2015 2CARE HD Clinical Trial Stopped Early for Lack of Benefit |
hdsa.org/news/huntingtons-disease-society-of-america-awards-... | 01/28/2015 Huntington’s Disease Society of America Awards Additional HD Human Biology Project |
hdsa.org/news/jang-ho-cha-md-phd-appointed-chairman-of-the-b... | 01/28/2015 Jang-Ho Cha, MD, PhD Appointed Chairman of the Board of Trustees at the Huntington’s Disease Society of America |
hdsa.org/wp-content/uploads/2015/01/Global-Outcomes-Data-and... | 01/28/2015 Global Outcomes Data and Possible New Therapies in the Huntington’s Pipeline |
hdsa.org/events | Events |
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/thwcapecod | 6/13/2020 10AM Team Hope Walk- Cape Cod 255 Water Street , Plymouth, MA 02360 |
hdsa.org/hd-research/learn-about-hd-research/ | HD Research |
hdsa.org/healthcare-professionals-resources/ | Healthcare Professional Resources |
hdsa.org/get-involved/get-involved/ | Get Involved |
hdsa.org/about-hdsa/about/ | About HDSA |
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